midnight musings
for those who are religious, pls pray for my fren's little 6mo boy.
for those who are not, send best wishes to his home anyway!
from his daddy
"bbS has Chronic Granulomatous Disease (CGD). Basically it’s a rare condition in the family of immunodeficiency diseases that renders his body vulnerable to bacteria and fungus infections. In clinical terms, one of the major groups of white blood cells found in bbS cannot produce hydrogen peroxide to oxidise (and dissolve) common bacteria and fungus that gets into his body. In practical terms, a simple act of sucking on dirty fingers, an open cut wound or even a walk in the park could potentially kill him (if he breaths in the spores from fungi commonly found on tree barks). If you got time, you can look up Google to learn more about CGD, there’s plenty of information online.
bbS tends to get infections easily, hence we have to be very cautious about cleanliness ever since we found out about it. He got diagnosed when he developed a big lump in his neck in late May this year. It was an infection of the lymph nodes in his neck caused by a particularly strong and antibiotic-resistant bacteria called MRSA (commonly found on our skin). He has since recovered from that first infection and now he has developed his second infection in the lymph nodes under his armpit. But as of yesterday, we started to notice his neck growing another lump again (opposite side from the first infection), so we are monitoring him closely. We probably need to admit him into KKH to start his IV antibiotics soon as he is not responding well to his current oral antibiotics. So far all his infections have occurred in his lymphatic system which can be resolved quickly with IV antibiotics and surgery (to drain the puss accumulation). We are praying that he does not get an infection in a major organ (like his lungs or kidneys) as things would get very serious then.
Bottom line is, we need a bone marrow transplant (BMT) to cure him of this condition, otherwise his body would just keep getting infected by bacteria and fungi that are found everywhere and are normally quite harmless to us. Each infection would shorten his lifespan quite considerably if we do nothing about it. We have to do the BMT sooner rather than later while he is still somewhat protected by the antibodies that he is receiving from his mummy’s milk. Going to childcare or school would be out of the question while he still has this condition. Unfortunately neither mummy, his elder sis or myself have compatible bone marrow to S, so we can’t start the BMT process as quickly as we would have wanted. The only bright spark is that S has been coping very well even with his condition, in fact he is a very cheerful and interactive boy. It’s really heart wrenching for us to see him suffer when he gets admitted into the hospital. In my line of work, I go in and out of neonatal ICUs in Singapore quite frequently and see worried parents’ faces all the time, but little did I expect to be placed in such a position as well. The BMT process will see him stay in a hospital ward for no less than 42 days (once we find a bone marrow match). During which, he would have to undergo a short span of chemotherapy to remove his existing defective immune system so that his body would not reject the new bone marrow cells being grafted in him. After that, he would have to spend a few weeks in an isolation room after the BMT procedure while he has no immune system (and still growing a new one). No small feat for big and strong adults like us, so I can’t imagine what it would be like for a 6 month old baby. Hence please pray that bbS will somehow pull through this phase of his life. Every prayer is much appreciated."
heart break heart break [IMG=http://www.singaporemotherhood.com/forumboard/clipart/sad.gif]
S is only 2 weeks older than C2.
i was reading this in office late afternoon, then my eyes started to sweat profusely.