ARSA-Aberrant right subclavian artery

Ane.sve

Member
Hi there, i’ve just went for my 20th week detailed scan and radiologist discovered my baby girl has ARSA too. My gyne suggested that i should go for amnio but i’m not sure whether if i should for it or not. I didn’t test for any DS cause i’m only 26 and no family history of DS. So another opt is to go for the harmony bloof test. For a peace of mind. For those mummy who have experienced this..Mind sharing ur experience..
 


lady081980

Active Member
Hi there, i’ve just went for my 20th week detailed scan and radiologist discovered my baby girl has ARSA too. My gyne suggested that i should go for amnio but i’m not sure whether if i should for it or not. I didn’t test for any DS cause i’m only 26 and no family history of DS. So another opt is to go for the harmony bloof test. For a peace of mind. For those mummy who have experienced this..Mind sharing ur experience..
It better for u to go straight to amino for peace of mind. If touchwood harmony is positive, u still need to go for amino. (Waste time and money again)
 

MkJy

Member
Hi there, i’ve just went for my 20th week detailed scan and radiologist discovered my baby girl has ARSA too. My gyne suggested that i should go for amnio but i’m not sure whether if i should for it or not. I didn’t test for any DS cause i’m only 26 and no family history of DS. So another opt is to go for the harmony bloof test. For a peace of mind. For those mummy who have experienced this..Mind sharing ur experience..
Hi, my baby also has ARSA detected at 20 week detailed scan and was also recommended by the gyne to do amino and we did not do it as there is a chance of miscarriage and now my boy is a healthy and bubbly 9 month old like any other normal kid. Do not worry so much. :)
 

Ane.sve

Member
Hi MkJy!

Can you share with me more of ur experience? Like any complications after birth? Do they monitor your baby?
 

MkJy

Member
Hi MkJy!

Can you share with me more of ur experience? Like any complications after birth? Do they monitor your baby?
I didnt have any complications after birth, they did a check on my baby after birth and everything is normal. And ARSA doesnt affect the baby growth. The doctor told us just treat him as a normal boy. Dont worry so much
 

imkfanatic

Active Member
Just saw your post. It happened to me too. I’m expecting twins and during 20w scan, sonographer detected ARSA on one twin. Told me about linkage to DS. I was so worried and teared up. The on duty dr at kkh told me about the risks and asked me go counseling and do amnio the only option. If terminate 1 twin, the other twin may not survive too. If decide to terminate pregnancy I have to do so before 24w by law. Seen my gynae after that as was advised to do amnio as blood test is not 100% accurate.

So next day I called up many private gynae to book slot for second opinion. Went to one at Camden. Paid a hefty sum for another detailed scan.

After discussion with hub, we decided to go ahead with amnio to have a peace of mind. Opted for express result and for assurance that twin A has no DS. Phew really a sigh of relief after weeks of worrying and stress.

Well it all depends on what u want to know. Can u live with it without knowing the truth? What will u do if result is undesirable?
 

Ane.sve

Member
Just saw your post. It happened to me too. I’m expecting twins and during 20w scan, sonographer detected ARSA on one twin. Told me about linkage to DS. I was so worried and teared up. The on duty dr at kkh told me about the risks and asked me go counseling and do amnio the only option. If terminate 1 twin, the other twin may not survive too. If decide to terminate pregnancy I have to do so before 24w by law. Seen my gynae after that as was advised to do amnio as blood test is not 100% accurate.

So next day I called up many private gynae to book slot for second opinion. Went to one at Camden. Paid a hefty sum for another detailed scan.

After discussion with hub, we decided to go ahead with amnio to have a peace of mind. Opted for express result and for assurance that twin A has no DS. Phew really a sigh of relief after weeks of worrying and stress.

Well it all depends on what u want to know. Can u live with it without knowing the truth? What will u do if result is undesirable?
Hi imkfanatic, sorry for the late reply. I did my harmony test but the test failed my gentic counselling told me that baby DNA is not enough on my blood. I was really devastated my hubby told me not to think to much as we will still keep the baby despite if she have DS or not.. how old are your twins now?
 

pluginbaby2

New Member
Hi my pertained scan detected ARSA too. Gynae told me the same thing to test for DS. But I didn't as the percentage risk of miscarriage is higher than the percentage risk of DS in ARSA babies. So that didn't make sense to my husband and I. My babygirl was born with no complications and the PD didn't highlight any issues with us. She's 2 months old now. However I must mention that she keeps throwing up after her feed. My Gynae did highlight that the worst case scenario is poor digestion. She has a bit of regurgitation some days. But sometimes she will just purge like Merlion. Daily min 3times. But her weight gain is not optimal.. Very2 low percentile.. ); so that's just something I wanted to share. She's exclusively breastfed as advised by my dr.
 

Ane.sve

Member
Dear pluginbaby2,
Thanks tor sharing your experience. Very much appreciated .. I’ve tried google abt ARSA but there wasn’t much information. May i know does your daughter have problem with breastfeeding? Like choking or so?
 

pluginbaby2

New Member
Dear pluginbaby2,
Thanks tor sharing your experience. Very much appreciated .. I’ve tried google abt ARSA but there wasn’t much information. May i know does your daughter have problem with breastfeeding? Like choking or so?
Hey.. No worries at all glad to share. She doesn't have any problems breastfeeding. Sometimes it just sounds like she's gasping when my flow is too fast.. So I will unlatch no matter how unhappy she gets to burp her.. Then I continue bfeeding again. It kinda works sometimes but daily there will def be episodes where she will vomit. So I feed on demand cause I can't be sure what's her intake like. She was born 3.2kg. Now she's barely hit 5kg n she's 2.5months.
 

shona

New Member
Hi there, i’ve just went for my 20th week detailed scan and radiologist discovered my baby girl has ARSA too. My gyne suggested that i should go for amnio but i’m not sure whether if i should for it or not. I didn’t test for any DS cause i’m only 26 and no family history of DS. So another opt is to go for the harmony bloof test. For a peace of mind. For those mummy who have experienced this..Mind sharing ur experience..
hey hi , i am also going thru exactly the same situation as urs, my baby has arsa , rest everything is ok , i have done harmony , waiting for the results.I wanna ask you hows ur baby doing??
 

shona

New Member
I didnt have any complications after birth, they did a check on my baby after birth and everything is normal. And ARSA doesnt affect the baby growth. The doctor told us just treat him as a normal boy. Dont worry so much
hi there, my baby has arsa , as my NT results were very low risk ,but doctors are saying it is sometimes related to down syndrome, i have done harmony test , waiting fr the results,but m worried, plzz suggest.
 

Ane.sve

Member
hey hi , i am also going thru exactly the same situation as urs, my baby has arsa , rest everything is ok , i have done harmony , waiting for the results.I wanna ask you hows ur baby doing??
Hi there shona,

My baby is now 2month old she was born a normal, no problem feeding or what so ever. After birth the doctor didn’t even mention anything related to her arsa as it cause no issue at all. Just relax and enjoy ur pregnancy
 

shona

New Member
Hi there shona,

My baby is now 2month old she was born a normal, no problem feeding or what so ever. After birth the doctor didn’t even mention anything related to her arsa as it cause no issue at all. Just relax and enjoy ur pregnancy
thankyou soo much dear for replying , it gave me so much relief to hear that .did u go for any other further tests??
 

cindyyy

New Member
hi there, my baby has arsa (discovered during first trimester screening @ 12 wks) too and so there's higher risk of DS..we decided to go for amnio but that's only in another 2 weeks (as can only be done earliest 16wks) but the results take another 2 weeks after amnio...it's the waiting is killing us too ;( and we can only hope baby has no down's and is normal.. stay strong shona! I'm trying to tell myself that we need stay positive, so our baby can feel it and be healthy!
 

shona

New Member
hi there, my baby has arsa (discovered during first trimester screening @ 12 wks) too and so there's higher risk of DS..we decided to go for amnio but that's only in another 2 weeks (as can only be done earliest 16wks) but the results take another 2 weeks after amnio...it's the waiting is killing us too ;( and we can only hope baby has no down's and is normal.. stay strong shona! I'm trying to tell myself that we need stay positive, so our baby can feel it and be healthy!
hi there, my baby has arsa (discovered during first trimester screening @ 12 wks) too and so there's higher risk of DS..we decided to go for amnio but that's only in another 2 weeks (as can only be done earliest 16wks) but the results take another 2 weeks after amnio...it's the waiting is killing us too ;( and we can only hope baby has no down's and is normal.. stay strong shona! I'm trying to tell myself that we need stay positive, so our baby can feel it and be healthy!
hi there, i hope everything will be ok, u can go for harmony also, anyways, in which hospital u r going?did you do the NT scan test too?
 

cindyyy

New Member
yeah, but harmony not so sensitive for DS while amnio can give a definite yes or no for trisomy 21- so we decided to go for that. I'm at kkh...NT scan was ok, just that my hcg was quite high...Dr mentioned that the arsa increased my risk factor but didn't rely mentioned abt e hcg level (though after I googled I m also quite concerned)

how abt yourself which hospital you at?
 

shona

New Member
i am also going in kkh, ya amnio is good but it has1:300 risk of miscarriage , i am sure u r aware , i hope everything goes well, what number did they gave you for the risk of DS?
 

cindyyy

New Member
yeah, we considered the risk...my risk is 1 in 100 (didn't seem too bad but comparatively to the norm its quite high), initially with the blood test it was 1 in 2000 (but the Dr mentioned with ARSA seen on the scan, it dropped to 1 in 100)...hard to find anything very much online about arsa- aside from it happening in 1 to 2% of normal population...hope everything goes well for your harmony test too...
 

shona

New Member
yeah, we considered the risk...my risk is 1 in 100 (didn't seem too bad but comparatively to the norm its quite high), initially with the blood test it was 1 in 2000 (but the Dr mentioned with ARSA seen on the scan, it dropped to 1 in 100)...hard to find anything very much online about arsa- aside from it happening in 1 to 2% of normal population...hope everything goes well for your harmony test too...
Thanks a lot dear, let's pray , I hope everything will be fine for you , all the best , and thanks for replying to my questions.
 

shona

New Member
hi there , just to update , today i got the call from the hospital, and baby has low risk , i am very happy to know the result, and i am sure your baby is ok too, dont worry .
 

cindyyy

New Member
Thats great news shona! You must have felt quite a relief! I hope so too...lets pray all will be fine and we will have a smooth pregnancy:) you take care yeah!
 

Ariagg

New Member
yeah, we considered the risk...my risk is 1 in 100 (didn't seem too bad but comparatively to the norm its quite high), initially with the blood test it was 1 in 2000 (but the Dr mentioned with ARSA seen on the scan, it dropped to 1 in 100)...hard to find anything very much online about arsa- aside from it happening in 1 to 2% of normal population...hope everything goes well for your harmony test too...
Hi Cindyy,
I have the same case with my 2nd baby in my 20 weeks screening.They suggested me for amnio but i don’t wanna take risk of miscarriage also.Can u please share your update on your baby?
 

FLing

New Member
Hi Cindyy,
I have the same case with my 2nd baby in my 20 weeks screening.They suggested me for amnio but i don’t wanna take risk of miscarriage also.Can u please share your update on your baby?
Hi Ariagg, did you proceed to do the amnio? I also detect my first baby girl with ARSA in 20 weeks scanning. I really worried and cry whole night why this will happen to me. I also scared of pain in doing the amnio.
 

FLing

New Member
Hi Guys,


Did everyone do harmony test just to confirm they are low risk only when your baby is detect either ARSA? Or did you all proceed do the amnio? Is Amnio painful and really have risk?
 

Ariagg

New Member
Hi Ariagg, did you proceed to do the amnio? I also detect my first baby girl with ARSA in 20 weeks scanning. I really worried and cry whole night why this will happen to me. I also scared of pain in doing the amnio.
Hi there,
I was at same condition at first but now am coping fine and enjoying my pregnancy.The fact is that everyone gets a pregnancy scare at their 20th weeks ultrasound .(at least most of them) The good/bad thing about this US is that it happens to notice even the tiniest things in babies which most of the babies born without even knowing.Even my gyno told me it’s not a big problem & most of the babies comes out fine.
Now coming to the point.We didn’t go for amnio.I did my 12-14 weeks blood test for Down syndrome and it was negative.If baby’s defect is only ARSA then you shouldn’t be worried too much on top of that if your blood test came out negative as well.Just enjoy your pregnancy and have faith.Will pray for you
 

FLing

New Member
Just saw your post. It happened to me too. I’m expecting twins and during 20w scan, sonographer detected ARSA on one twin. Told me about linkage to DS. I was so worried and teared up. The on duty dr at kkh told me about the risks and asked me go counseling and do amnio the only option. If terminate 1 twin, the other twin may not survive too. If decide to terminate pregnancy I have to do so before 24w by law. Seen my gynae after that as was advised to do amnio as blood test is not 100% accurate.

So next day I called up many private gynae to book slot for second opinion. Went to one at Camden. Paid a hefty sum for another detailed scan.

After discussion with hub, we decided to go ahead with amnio to have a peace of mind. Opted for express result and for assurance that twin A has no DS. Phew really a sigh of relief after weeks of worrying and stress.

Well it all depends on what u want to know. Can u live with it without knowing the truth? What will u do if result is undesirable?
Is the amnio test painful and also risky to do? Worried on the percentage of miscarriage
 

Qalisha

New Member
Hi, my baby also has ARSA detected at 20 week detailed scan and was also recommended by the gyne to do amino and we did not do it as there is a chance of miscarriage and now my boy is a healthy and bubbly 9 month old like any other normal kid. Do not worry so much. :)
Hi, may I ask if your son had any feeding issues?
 

J.wang

New Member
Hi I had my detailed scan for Down syndrome at my 12th week and suspected to have ARSA which is a syndrome for DiGeorge. At 15th week, it was confirmed that I have ARSA. FTS blood test is all normal and at low % of 1:5600. But with the presence of ARSA, my overall risk % increase to 1:280 . Now I am considering to go for the Amnio Test. Does anyone undergo the ammio test after found to have ARSA and how was the test result? #worriedMum
 

FLing

New Member
Hi I had my detailed scan for Down syndrome at my 12th week and suspected to have ARSA which is a syndrome for DiGeorge. At 15th week, it was confirmed that I have ARSA. FTS blood test is all normal and at low % of 1:5600. But with the presence of ARSA, my overall risk % increase to 1:280 . Now I am considering to go for the Amnio Test. Does anyone undergo the ammio test after found to have ARSA and how was the test result? #worriedMum
Hi I also went for amnio test recently and result came back is a normal baby. Although it has ARSA which doctor only advise me during my week 20 scan, but doctor say will not affect the baby. So not to worry too much. Just be brave to go for the test and positive mindset that your baby is alright.
 

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