Support Group - Endometriosis and Fibroids.

Hi Trustbaby,

Thanks! I just took 1 jab and it's driving me nuts with the hot flushes and headaches. Need 2nd one this sat... not looking forward to it at all.

May I know how long after your last jab did your menses return?
 


Hi chewy, surprisingly I only had two jabs. Some had two. I asked why and iwas told I wasn't severe. I took the last jab in April and my menses came back in July. Everyone is diff but mostly around the same time. Now I M on the TTC. Hopeful but I know no promises. Best wishes!
 
Hi gals,

Today, i am supposed to have my period. A waiting game. Even start wearing my pads just to get ready. On the extreme deep down into my heart, i am hopeful.

I have this feeling ppl with endometriosis may have to use IVF to conceive. Chances is higher. The pregnancy is also like a treatment to our endo. since no period for a 9 mths. My fren told me that you need one time to get successful and the next time it will be easier.

How are you girls doing?
 
Hi trustbaby,
instead of IVF. Have you consider SO IUI first? My chinese physician said after these jabs, our chances might imporve. Check out SO IUI with your gynae.
 
Hi twinstars, Try again. Hopefully next try will be exciting.
happy.gif
all the best ok.
 
Hi Mrstan,
I have similar issue as u but mine is not Endo. It's adenomysis with an enlarged uterus. Under going the same jabs (lucerin or GnRH) as some of the ladies here.. to shrink the uterus before SO IUI later in the year.

Trustbaby,
Jai u !!! Hope to hear good news soon
 
Hi Chewy and trustbaby,

Thanks fyi.

Chewy,
I guess mine is the same problem as yours which is adenomysis that cos an enlarge uterus. But i dun feel comfortable to have the jab.
Have u finish the jab? Is your uterus smaller after this?
I might want to seek for TCM treatment. But i know that TCM treatment was totally different from western.
TCM will give u medicine to clean off the blood but western medicine is to stop the period. Contradicting right?
Any side effect after taking the jab other than hot flash, depress etc.
Read that if after the jab, will not ovulate for the following months when period came. Is it true?
 
Hi MrsTan,

I had just taken the 2nd jab. Won't know if the uterus is shrinking. But I'm feeling less bloated. But my side effects are bad with hot flash, migraine and water retention.
I actually didn't want to take the jabs too. Instead I went for TCM and acupuncture @ Raffles Hospital. It did help but Dr felt that it's way too slow. And as I want to TTC again soon. He advise to take this jab. I realized then that this is a very common jabs for both endo and ladies undergoing IVF. Not sure about the ovulating after the following months. But was told that menses will only come back after 2 months or more.
Do consider and do the necessary you deem most comfortable.
 
Hi gals. I have menses and back to clomid again. Will get myself scan on the 8 day and see if I ovulate.

Thanks for encouragement and stay together. My friend gave me hope that she got pregnant even with endo and she took hormone injection to assist better. Maybe I should recommend to my doc. All the best.
 
Hi gals,

Just came back from holiday...a short trip on cruise...super fun. Relax and enjoyable.

I hope this month will be promising for me and for us all...Baby dust again to all. Here we go again.
 
Hi gals,

I notice tat alot of gals dun really understand hw does GnRH work jz like mi, so i copy this from other site to share with everyone.

What are GnRH agonists?
GnRH agonist is a medication that works against GnRH (gonadotropin releasing hormone) in the brain. GnRH works on the pituitary gland, helping it to release follicle stimulating hormone(FSH) and luteinizing hormone (LH). These hormones play a key role in ovulation. GnRH agonists work to block the action of GnRH, preventing the release of LH and FSH, thus preventing ovulation.

When are GnRH Agonists Used?
GnRH agonists are used to help stop ovulation from occuring too early. When ovulation occurs early, eggs tend to be of a lower quality and less useful for use in:


•IUI
•IVF
•GIFT

GnRH agonists are also used to help treat the growth of the menstrual lining in patients with endometriosis.

How do GnRH Agonists Work?
GnRH agonists work by essentially "shutting down" the pituitary gland. The pituitary gland is a tiny gland located in the frontal portion of your brain, just behind your nose. It secretes LH and FSH to trigger ovulation. GnRH agonists overstimulate the pituitary, causing it to release more FSH and LH. When it senses this overstimulation, the pituitary gland shuts down, stopping ovulation from occuring.

Types of GnRH Agonists
There are actually two types of GnRH agonists:


•GnRH Agonists/Anologs: These take several days to work on GnRH in the brain. They can take up to a week or more to stop ovulation.
•GnRH Antagonists: These work much more quickly to stop ovulation. They are usually given along with ovulation stimulation drugs and can stop premature ovulation in a matter of hours.

How are GnRH Agonists Taken?
GnRH agonists and antagonists are typically given in combination with ovulation stimulation medications. GnRH agonists are given in the form of intramuscular or subcutaneous injections, or as a nasal spray. They are typically given once or twice a day, for several days, after which ovulation stimulators are administered. GnRH antagonists can be given at the same time as ovulation stimulators.

Side Effects of GnRH Agonists
When taken without ovulation stimulators, GnRH agonists cause similar side effects as incurred with menopause. Common side effects include:


•hot flashes
•mood swings
•insomnia
•headache
•decreased libido

GnRH antagonists also cause side effects, including headache, nausea, and swelling, itching, and redness and the site of injection.

How Effective are GnRH Agonists?
GnRH agonists are quite effective at preventing premature ovulation, helping to increase the likelihood of pregnancy during IVF and associated treatments. They work to prevent the release of underdeveloped eggs and instead, promote the release of healthier eggs during ovulation.


All the GnRH agonists work in exactly the same way. When used continuously for periods of longer than 2 weeks, they stop the production of oestrogen by a series of mechanisms. This deprives the endometrial implants of oestrogen, causing them to become inactive and degenerate.

Most women will stop bleeding within 2 months of starting treatment. However, some will experience 3–5 days of vaginal bleeding or spotting about 10–14 days after beginning treatment.

You should notice an improvement in your symptoms within 4–8 weeks of beginning treatment, but some women will experience a temporary worsening of symptoms in the first 2 weeks. This is because it takes a little while for the body to clear out its hormone production, and during this phase oestrogen levels will actually increase and may therefore stimulate the disease until the stabilising effect of the GnRH agonist kicks in.

The return of ovulation and menstruation is very variable. Most women will menstruate within 4–6 weeks of their last spray of buserelin or nafarelin, or within 6–10 weeks of their last injection of goserelin, leuprorelin or triptorelin.
 
Hi. I just went for scanning today to see the egg growth rate. Saw my egg maturing and did the urine test that it is ovulstibg soon. My doc gave me a booster Jan to enhanced the growth. I m nervous but just plan aheah on this weekend.
 
Hi twin stars,

Yes. it shows my eggs on left and right...and also show the one egg that is growing. To enhance the growth, my doc suggest that i take the hormone injection so that i can TTC on weekend... They also checked my urine to make sure my LH surge is there to confirm ovulation. Since i choose to do it naturally for this round, i get to do it over weekend. Cross my fingers. Not easy feeling...see whether this working for me or not...
 
Hi Trustbaby,

I m not seeing any gynae at the moment and didnt take any clomid. Im scared to do any tests or scan, so Im letting nature take its course.
 
Hi twinstars. It's okay girl. Take hour time. Sometimes rushing through is not a good idea. For me I just follow my doc decision and see how successful her method is. Everyone is different. No matter what we will reach our goal one day. Sooner or later hopefully.
 
Hi gals, do you know how fast will the endometriosis come back after lap and treatment?

i am just wondering that since i have TTC since July. My doc didnt mentioned anything when i had my scan earlier. Any clue?

Sandy
 
Hi gals, how are you all? Sunbelle, pipi and twinstar??

I just came back from my great eastern run. I join the 5k one. My hubby stop me from going and my frens discouraged me yet I went! The reason was that since I am on TTC and near to the next cycle it won't be fair if I acted irresponsible.

I did it becoz I want to continue with my life with or without the same way. Since I have no clue wat my status I might as well live like normal. Feel great now.

Do you think I m being fair to myself? Well if there is baby dust it will be everywhere .
happy.gif


I went tcm on Thursday just walked in and check myself up. He gave powder form to eat everyday twice a day. I took once and my frens encourage to stop it. Scare that it will disrupt my hormone intake currently.

I will resume once nothing happen. I do it concurrently since no harm. I went to eu yan san. Any comment? Need to hear you gals out and my approach. Hehe.
 
Hi Trustbaby,

I had visited Eu Ren Sang previously too. I find their medicine quite good on me. I told the tcm abt some of the problems i had. Eg, i couldnt sleep well at nite n painful cramps during menses. After taking the med for sometime, i did find relief.

Did you let the tcm know u r on clomid? Maybe then they can advise if the med will disrupt your hormones.
 
Hi twinstar yes I told him that I was on clomid for 5 days, then injection then on utrosgesten pills.
He said I could take chinese medicine two hours apart. I am scared somehow.
What stage are you now?
 
Hi twinstar, my period came. Its okay. I dont feel sad for some reason. In fact i look forward to the new treatment.
i am opting to do the IUI for this coming round.
i will take a break in Dec and Jan...so i want to plan again this Nov mth. Wish me luck again!

Whatever the outcome is i will try my best gals...one step at a time...i will reach there. IVF i save it till mid next yr if no results.

Twinstar, it seems only you and me actively on this thread. What happen to the other gals...? any idea? hehehe..miss them too. wonder how they are doing.
 
hi Trustbaby,

Thanks for sharing abt your updates. Hope we have better luck for the coming months. My menses came tdy. It was late for 4 days. Wish it hadnt come...
 
hi trustbaby and twinstars,

long time din write in this post. jus about to share a good news with u all but turned into a sad news. my baby has no heartbeat and did a D & C to take it out. i cannot accept this as it is jus a week difference.

yeah now i am resting my emotions and also din wish to tok to people whom are just probing into my matters. yeah havent break the news to some frens and collegues cos havent ready to do so.

so the good news is i concieve when on the GNRH Jab which is onli 10% chance. is a miracle baby .. our happiness is shortlived. but the positive note to all is we all k get pregnant with our condition.

baby dust to all.

still feeling sad on the sudden loss. no words can express the grieve.
 
Hi Sunbelle,

It is indeed depressing to know wat had happened. I can understand your grieve. Last yr i had an ectopic pregnancy, till now when i thought abt it, i can still feel some sadness. The feeling of loss wont be totally erased with time, but nevertheless it will lessen as time goes by. You are not alone, we will walk the path with you.

Talk to others only when you feel you are emotionally ready to do so. Cry out loud if you feel like crying. In the meantime, please take care good of yourself. You need to replenish your body with tonic to nurse it back for future pregnancies.

Thanks for still sharing on this forum abt your recent update.
 
Ladies,

I was just reading thr all the posting again. This journey is indeed tough. Jia U !! Hope to hear more good news....

Hugz to you sunbelle... you are in the other thread too. Do recuperate and rest well ...

Trustbaby / Twin stars,
May I just ask was it close to 3 mths after your last jab before your menses return? I had my 2nd jab back in early Oct. Now, anxiously waiting for my AF to report. I'm still hopeful to do my SO IUI in late Dec.
 
hi gals,

jus cannot believe wat has happened. it was a loss.so sad whever i tink of it. logically, i strongly believe time will heal all wounds. but needs time.

yeah i have also post in support gp for miscarriages to have more frens there. in fact is a good way to relive our sadness cos they also undergone the same tin.
 
Hi Chewy,

My last jab was in Mar 08. I still have menses/ spotting in Apr, after which i was totally dry for 2 months until menses returned in Jul.
 
Hi Sunbelle,

I know how difficult it is to go through , yes time do heals , take all the time you needed. Agreed with you that the forum is a great way of support. It is like my cup of comfort during my last mid term m/c in May. My world seem to have collapsed and it's those ladies on the forum that help me pick those pieces up slowly.

I had my rough time too , I since had 3 m/c but I'm picking up my courage again to try soon I hope in end dec or Jan. So I hope to hear some good news on those threads I have been reading.

Thanks Twin Stars. Guess, I will have to be in the game of waiting till AF report later in the year or Jan/Feb.
 
HI Sunbelle, i am deeply sorry for your loss dear...i tear with you and i can feel your loss.
Ya i agree no words can replace loss but time can. You just take your time to grieve and you will reach a point that it is time to move on. You gotta keep on trying. you so close already! i believe you need to find out the reason and rectify the problem and improve the next try...In a way, i look at it that there is definately strong hope that you will conceive again soon.

This mth i m suppose to try IUI for the first time after the lap and after numerous try under clomid. I feel sick last week and got worst. My hubby just sent his sample last weekend to see if he is alright...i m so gear up but my body couldnt take the pressure. Now both of us are sick together..i called today to postpone the IUI if need to be...but my doc said its okay to proceed if my hubby is okay by then. will see how. Now i m just tired of coughing and coughing and trying to get well. today on MC.

Hi chewy, i got my period in july after my last jab in april 09. I only took two in total. It depends on your body.

We have to keep on trying especially after lap and GnRH injections...we will need to try fast so that the endometriosis will not return to haunt us again.

Baby dust to all. Sunbelle, we are here for you. thks for sharing and telling us that we still have hope to conceive.
 
Hi Trustbaby,
Thx !!

I hope you recover well. The weathers these day is not helping. So weird.

Try this out if you do take tea. My chinese physician taught me this method when my DH was sick and coughing for a long time. And it work ...

Pu'er mixed with white chrysanthemum. Just add a bit of pu'er if not it's bitter.. as for white chrysanthemum, it's up to how you like it. Drink it hot before bed. It will clear your lungs and let you sleep better too. Drink till your cough is better.
 
Thank chewy for your tips. But, what is pu er and where to get White chrysanthemum?

Last weekend I boiled lo han ko and added yellow chrysanthemum at the end when it's still hot and today I boiled barley.

Your method interesting! Tell me more.
 
Pu'er 普洱茶 is another type of green tea.
Both can be bought at any chinese medical hall. Don't have to buy whole packet of Pu''er, ask them for lose tea leaves. Most shop do have.

(Puer + white chrysanthemum) is serve as tea in some restaurants especially with Dim Sum.

Just remember it might be bitter if too much pu'er is added. Hence, just a pinch of it. Or if it's bitter the first time u prepare. Add Honey .
Btw, don't have to worry about the White Chrysanthemum being too 'liang'. It also helps to detoxicate and relieve rheumatic pains. Pu'er is good for detox too !!
 
Trustbaby,
just found out from Hubby is called 'Kuo Po' in cantonese.

Give it a try .. let me know if it works... He took it for 3-4 days.. on the 5 days onwards.. his coughing was lesser and he recover.
 
Hi Chewy,

Thanks for your reply.
So wat medication does your TCM doc give you?
According to my TCM, he mention i need to take some medicine to circulate the mense. Which also mean the abortion medicine in Chinese.
Is it this that u taking?

How slow is the treatment that u mention when u are with TCM?
 
Hi MrsTan

I didn't know what the medication was, just herbs to purge out more blood clots if any during menses.

There is another type known as 'Red flowers' Hong hua, which some ladies took after birth or miscarriage. It helps to purge old bloods too.

Slow for me coz my womb is not shrinking back at every scan. I had since took 2 jabs of the GnRh. So it did shrink now. But I dealing with the side effects which it's difficult.
 
Chew,

Thanks for your quick reply.
The jab really can shrink down? That's good. But what side effect u facing now?

Did your gynae told you that u need to get pregnant asap if not the thing will come back? Cos i google that if stop the medicine, the problem will came back.

By the way, do you have mense pain when they find that u have adenomyosis? And do you have abnormal bleeding or long and heavy menses?

Sorry for the so many question as i'm quite worry for health.
 
MrsTan,
maybe you can PM me or chat online later.


Yes, it did shrink after 2 jabs. Side effects, Hot flashes & insonmia are really bad. The window period for me to get pregnanat is within 6 months. But I will try SO IUI once my menese return later in the year or Jan.

No I do not have mense pain it's through my routine check up and scan that was determine adenomyosis. And I normally do not have abnormal bleeding. Just heavy menses for 3 days.

Hope the above helps to clear some doubts
 


Chew,

Hope u are ok with your side effect. Since it's already pass your 2 jab, the side effect should be reduce right?

It sound so horrible for the side effect that i have second doubt to go for the jab.

How long is your TCM treatment before the jab? U went to scan the size every cycle during your TCM treatment?
 

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