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Help!! endometriosis laparoscopy

Discussion in 'Trying To Conceive' started by Jasmine Yeo, Dec 12, 2016.

  1. eun1411

    eun1411 New Member

    Endometriosis is a nightmare for me. I suffered from it since my teen years BUT never for once that I thought it would be that serious. Most of my classmates have the same pain and so I thought it is so "normal" till it escalated to me trying to get painkillers (ponstan to synflex) from different doctors. Panadol menstrual did not help either so I have to resort to those painkillers to numb the pain. It was only when I went to the polyclinic during one visit that the doctor suggested that I should actually seek help then continuing taking painkiller.

    So finally, I decide to seek help after getting a referral and how shock I was when I was diagnosed at 29yo with endometriosis at kkh. Then the discovery of the cyst was like 5cm but within months it grew too huge till I was suggest surgery aka laparoscopy. Ended up, I decided to seek a 2nd opinion at Thomson Medical and to my alarm instead of one cyst now, I actually got two which was quite huge that the doctor I saw at ThomsonMedical was worry it would ruptured.

    I did my surgery in Oct 2015, they discover that my endometriosis has spread to my pelvic, intestine and return. I was like omg is this a bad dream? As mine was pretty quite serious, I only went back to work in dec 2015 after my surgery in October.

    The anesthesiologist commended that I was still single and young too and to have this was really too harsh.

    Even after the surgery, I was put on Depo-Provera- a jab for 6 months and then Visanne which I am taking till now.

    I was hopeful that Visanne worked for me for quite a while so I decide to stop the medication for just 1 month and switch to another medication and to my horror my endometriosis has come back once again.

    Seemed like my battle with endometriosis will be a long one and I must be on Visanne till I get marry and decide to have kids.
     


  2. Babydustf08

    Babydustf08 New Member

    Hi Babylovin,
    Not sure if you will still be reading this post, just want to get some opinions from you ladies here.

    Chance upon this post as I am also seeing Dr Steven Teo.
    TTC for about 10 cycles with regular menses hence went to do a fertility check with Dr Teo.
    Through scans found out that I have polyps, endometriosis, and suspected Hydrosalpinx.
    Doc suggested to do surgery to clear off my polyps and endometriosis. He mentioned about 4 in 1 too.
    My concern about my Hydrosalpinx, doc told me that I need let him know my decision before the surgery whether to remove my tube or to repair it.
    To repair it, it will cost more, longer surgery time and the same issue might come back in the future.
    To remove it, it will be a straight forward surgery and I will depend on the other tube to conceive.
    I can’t decide. To repair or to remove? Feeling so lost. :(
     
  3. Babylovin

    Babylovin Member

    Hi Babydustf08, i got a notification :)
    Don't mind me asking but what is Hydrosalpinx?
    Dr Teo is really very proficient in keyhole surgery, he is still my gynae now and i have never regretted seeing him, instead i'm very thankful to have met him.
     
  4. Babydustf08

    Babydustf08 New Member

    Found out from scan that my left tube is swollen. It could some fluid around that area, he said he can’t advise much. Only by doing laparoscopy then he can see what’s in there. So before i proceed with the surgery I must tell what’s my decision.
     
  5. Babylovin

    Babylovin Member

    It's like endo, you can't fully tell the severity until you do a laparoscopy. Are you covered by insurance? How about try to repair first? And then tell Dr Teo if really cannot be repaired, then remove. You do know that endo will return also right...
     
  6. Babydustf08

    Babydustf08 New Member

    Yup read about it in this forum about endo coming back. But he didn’t say much about my endo. Cos like what you said he can only see it during the surgery.
     
  7. eun1411

    eun1411 New Member

    My endometriosis return not long too.
    Ever since my laparoscopy, I was on Lupron depot for 6 months followed by Visanne which I have been permanent on. My doctor agreed to let me stop taking my medication but it resulted with my endometriosis coming back. End up, I got to go back to Visanne to keep the endometriosis at bay. As I did not want to be permanentit on this drug, I asked my gynae what are the option. she told me only when I am ready to get marry and hve kids then I could stop the medication. If not I would have to keep taking medication to prevent it from coming back.
     
  8. bluetones

    bluetones New Member

    I did a lap myomectomy 2 months ago, I get that feeling, without squatting. I try not to squat or bend, cause there this compress and tugging feeling.
     
  9. ScarletHeart

    ScarletHeart New Member

    Hi I have very painful menses every month since 2 years ago. Its a sharp pain coming from the anus. It can affect my work life and sitting down or even walking. I went through 3 transvaginal ultra sound from 3 different gynae clinics and they did not see any endometriosis in my uterus.

    Please advise what should I do now? I’m lost and I do not want to spend big bucks to go for ultrasound scans again. :(:(:(
     
  10. InfiniteHeaven

    InfiniteHeaven New Member


    It sounds like you may have endometriosis of another area. The uterus is not the only place it can be and an ultrasound is not great in detecting endometriosis anyway! Sounds like you need a better trained doctor. Join this group on Facebook called ‘Nancy’s nook’. Seriously, you won’t regret it. We need to educate ourselves as Gynaes often don’t have a clue about this condition. Also, excisional surgery is better than ablation- kind of like digging out the roots of a weed compared to simply pulling weeds out of the ground. You need a laparoscopy to properly diagnose and a trained endometriosis excisional surgeon, not just any so called specialist.
     
  11. InfiniteHeaven

    InfiniteHeaven New Member

    Please look up excisional surgery also! Im guessing it wasn’t done previously during your laparoscopy. I also advise Nancy’s nook on facebook to you, I’ve learnt a lot through there and there are 2 surgeons in Singapore who can probably help properly listed on there.
     
  12. Lynn_lynn

    Lynn_lynn New Member

    I just found out that I have endometriosis on one side and endometrioma on the other side. I just got a shocked from my medical screening results that doc suspect something and advise for further check on it. As results, the cyst were quite big (8cm).

    I'm thinking if I should just proceed with the gyne that I met in Raffles or get a second opinion. I'm lost and no idea who to go n get second option. Tried to call a few whom being mentioned in this forum, but most of the gyne are not available for a consultation within these few days.

    Can anyone share some thoughts?
     
  13. eun1411

    eun1411 New Member


    I went to seek TCM help cause my gynae was quite ok about it and even told me to give it a try. Surprising, under the two doctors ( western and TCM), my cyst that was discovered on the right went away when I went for my last medical review with my gynae. Was so happy that now we decide to stop the medication since all is clear and hope that the cyst won't make a reappearance again for the time being.
     
  14. Be_Be

    Be_Be New Member

    I am currently in the same situation right now (endo cyst 8cm). Had a appointment at kkh with Prof. THH last week but didn't get to see him as he is busy with other procedures. The other doctor advise to do Lap but I insisted to speak to him personally before making and decision. Appt is this week, hope to get some more information before deciding on anything.
     
  15. Lynn_lynn

    Lynn_lynn New Member

    I managed to meet another two doctors, Dr SF Loh and Dr Steven Teo. I'm at the point of making a decision on a healthy body or reserving my egg before the keyhole surgery.

    Hope you get to meet your gyne before making any decision.
     
  16. Cxt123

    Cxt123 New Member

    Hi,

    Did anyone do a keyhole surgery with Dr Goh SL?

    Thanks!
     
  17. MaidenIsabella

    MaidenIsabella New Member

    I just did endometriosis laparoscopy on July 2018. Every now and then my scars will feel throbbing pain. Does anyone share the same experience? Will it recover?
     
  18. Ms Z

    Ms Z New Member

    May I know what is your decision in the end? Did the operation affect your ovary egg reserve? Thanks
     
  19. Ms Z

    Ms Z New Member

    Hi, I am also in a similar situation. What did your doctors say? Wld keyhole surgery greatly affect egg reserve?
     
  20. Be_Be

    Be_Be New Member

    I just did my laparoscopy last monday....wounds are healing well at the moment and are currently on LUCRIN jab to allow the womb to rest and fully heal. Stayed in hospital for 2 days for better recovery. Dr Tan HH is really good and really care for his patients, he even came back to hospital on Christmas to check on my recovery.
     
  21. Be_Be

    Be_Be New Member

    Depends....location and size of the cyst.
     
  22. MaidenIsabella

    MaidenIsabella New Member


    I didnt do the lucrin jab, so my period came the next month.
     
  23. Babydustf08

    Babydustf08 New Member

    Hi Ms Z, I have decided to go ahead with the keyhole surgery. It’s going to happen this week. Everything still unknown for now but doc mentioned any removal of cyst at the ovary area more or less will affect the egg reserve.
     
  24. Lynn_lynn

    Lynn_lynn New Member

    Babylovin,

    Hope that you managed to conceive after the surgery.

    I'm going to meet my gyne to set date for the keyhole surgery soon. Wanna get your advise of what pre-op and post-op check up/blood test that you did so that I can better prepare myself?

    Thanks for sharing..
     
  25. Lynn_lynn

    Lynn_lynn New Member

    Keyhole surgery will affect egg reserve but no guarantee on much it will affect. So we need to make a choice over health and fertility.
     

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