Autistic children - Share your experiences here.

Dear all,

Glad to see this thread =)

I have a 3 year old boy, who shows traits of ASD but not confirm yet, he will be going for assessment this Friday at KKH, hope he will be fine =(

*Keeping fingers crossed*
 


Hi shinnonu,

Welcome here
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May I know the assessment is conducted by the KKH psychologist ?
 
Hi glymo
yes there are no transport arrangement to ARC. i know some parents share taxi to ferry their children or car pool..same as upie, i find their parent accompanied class very useful. i remembered my son had terrible tantrums or bite his bb bro, we used to 'threaten' to bring him to police station, or other 'negative' methods. one of the senior teacher recommended me to use 'reward/token' system which really work! they also help me to be aware what 'trigger' his negative behaviour, and what consequences will happen after that behaviour. and from there, they will try to figure out ways to solve my problems.(yes, i always 'bring my caregiving problems' to share with the teachers; and i felt insecure initially when ds had to leave arc then)but i did hear not so good points from other parents about arc as they focus alot of visual aids.. they are worried that the kids might get too comfortable with that kind of environment.. i would think that arc try to help children to slowly integrate themselves with the mainstream, rather than just put them there and hope somehow they will figure a way out on their own.. but i remembered there was one approach that i don't quite agree with theirs. my son used to ask alot of repetitive questions on his obsessions, fans then. he will ask what is that, etc and the teachers suggested to redirect him using pic schedules or other visual aids. but i could not bring myself to 'ignore his question' and always answered his questions but with a variety of answers. i believe this is opportunity to teach him as he is 'very engaged' and listened to my every word. i am very 'verbal' to him, hence sometimes the teachers don't find him very independent and need verbal prompts..
 
Hello, Tam! How's your son doing in prep course? Do u find it useful?
My son is affected by the new policy that the child can only go prep course at 7 years old, so next year he'll still spend one year at ARC (6 yrs old).
 
Thanks, Upie and Tam for sharing about ARC.

We are still waiting for a place in ARC. However, I try to do activities with him in the afternoon to enhance his various skills. We still go for private SLT and OT, thus, its still not so bad. Whenever I encounter any problem or behaviour which I cannot handle, I will refer to my therapists and they will usually make suggestions for me to try at home.

I always refer to a few homeschooling blogs and try the activities with my son. Of course, I usually modify them to suit my son and I find them really useful.
 
Upie - what is prep course?
Glymo118 - can share the homeschooling blogs site?

Anyone here kids is either mild autistic or just show symptoms of autism but inconclusive and still attend normal preschool? Can share experiences of the normal preschool ur kids r attending (good n bad)? And which Sch is it? I Ve heard of some normal preschool who r rather nasty or unpassionate abt such kids. These kids r actually smarter than the normal kids and yet Sch tell us they can't or don't want to teach them n ask to go special Sch but they r on the other hand not that severe autistic to b in special Sch. It's sad to see their intelligence n talents r not put in use or receive proper nurturing or teaching.
 
Hi Upie
i think prep class benefitted him alot! They teach daily living skills (put on clothes, socks shoes, etc, and being neat and tidy, remember parents' contact and address etc) and correct exam behaviour (check thr every pages, do not peep other papers, ask for help if not sure), and correct typing skills too. i was very impressed... in terms of academic, they also teach english, maths and science(discovery). my son now can complete revision papaers (8 to 10 pages) independently; without me to keep on prompting him to finish his work or turn to next page/qn.. they also have spellings, number bonds, comprehension etc. speaking of which, i better let him revise before term 3 start next mon...
 
Hi Upie
i went in the pathlight website now.. yeah, they change the admission criteria to 7 yrs old, instead of 6 yrs old..hmm.. not sure why..
as we saw ds was learning so much things happily at pathlight, we are in great dilemma whether to send him to mainstream next year (we initially decided to send him to one near our house).. and if he can't cope in mainstream, we got to requeue all over again..
 
Hi cyn, my son is diagnosed with mild autism.. but truly i don't think he is smarter than normal kid.. average iq only lah.. he is attending normal kindy in the morning (can u refer to my previous posts on my selection of kindy pls?) whether the school good or bad, i think it depends alot on the teachers. he was there since nursery. hence will be 3 years at the end of 2011. i am most pleased with his k1 mandarin teacher and k2 english teacher. they are very supportive and give frequent feedback and provide extra support for him.
 
hi, pls share what were the initial characteristic or behaviour that made you suspect of your child and then to inform doc to check/diagnose correctly?
 
Hi Cyn,

My son was also diagnosed as mild ASD kid...he is smart with some sensory issue. I do agreed with TAM that school is good a not really depend from the school.... For our case, my son has been in first child care centre for 4yrs.....it was ok & school fee is very reasonable but was closed down due to govt need that place., 2nd child care centre was very bad...the school only have abt 10kids(include my son). school is new Teachers with limited experience(they requested us to help for our kids & we do share with them the ideas of handling my son but they are "too lazy" to take our ideas)....principal & teachers gave us alot of high hopes but it turn up to be very bad for my son(all the old behaviour came back--wasted our efforts of training our son)., we withdrawn him out after 5months. Now the current one good...the school let my son to mix with the normal kids... his behaviour is better now. He was also able to play & mix with his peers & the teacher everyday update us what hapoen in school & they also helping us to train him too ....
 
Dear Kath & Tam,

May I know which childcare that you enrol your son in as I want to put my son to childcare as well. Hope that can improve his social skill.

Hi Tam,

Why don't you let your son try mainstream if he really cannot survive then you can pull him out. My son school principal advise us to try mainstream before going to special school because she said once you let them in special school the mainstream school would not or not willing to accept them anymore because they will think that they not able to cope in mainstream. This is only my opinion and hope can help you.
 
Hi Yee
Tks for your advice
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as pathlight is using appropriate methods to teach these children and he is really absorbing from their teachings, i believe i do not need to worry much on his academics(my expectation also very low lah; just pass will do) if he goes there. but if he goes to mainstream, i will need to give one to one tuition to him on my own. it is really tiring to teach him (i can lose my patience easily and forgot NOT to use punitive method..) and it would be good to hand it to the professionals. the negative part to send him pathlight is the worry if he picking up inapproriate behaviours from his peers / not getting the appropriate social interaction when he needed most..
 
Hi Yee
btw, pathlight is not really considered special school as they also cover normal academic subjects and require to take PSLE like the rest too. special schools have their own curiculum which focus on life skills and vocational job training (i think)..
 
Hi cynhere, prep course is the P1 Preparatory Course run by Pathlight school for our kids. Its a one year course, and Tam's post would have provided a very good synopsis of what they do. But have to go for an educational placement assessment first, then Pathlight's own selection assessment before getting accepted in the course (am I right, Tam?).

Tam, thanks for sharing so much on the prep course. Now I actually look forward to getting my son there! He just 'passed' his ed. placement test, so next year shall apply the prep course.
Ya, whether to go mainstream or Pathlight is a real dilemma for us parents. I am now also caught in between too. Mainstream, where he can socialise (or get bullied), or Pathlight, where he can gain confidence in the early stages of his life. My worry about mainstream is whether he can catch up with the work and pace and class size. The teachers have to oversee 30 students in a class, and sometimes it is difficult to pay extra attention to our kids. My worry about Pathlight is, as you said, picking up inappropriate behaviours (my son models those very well!), and socialising (his current class in ARC doesn't offer much opportunity because of the nature of the other 3 kids).
 
Hi chalkey,

Well, I suspected my son of being different between 1-2 years old, through my own understanding of my nephew and niece who are slightly older than him. He is different as he doesn't engage with others (toddlers or adults alike) and doesn't seek help when there is a need. He doesn't respond to us calling him, and then he also displayed some classic symptoms like spinning things and lining toys up in a straight line. My sis-in-law shared with me her good friend's son who also does the 2 things, and that was when I made closer observations and decided to call up NUH. Initially I was confused as he had a good vocab at an early stage and could follow one-part instructions.
 
hi upie,
will lining up lego blocks or stacking lego blocks up high a normal action for all kids? by not seeking help when there is a need, wouldn't that displayed your son's independence character instead of being autistic? how do you describe as one-part instructions, any example?

the reason i asked cos my gal seems independent to us, can speak in vocab, can engage with us except that she is full of energy - doesn't take day naps at all from birth till now, and sleeps very late wake up early..i don't know if it's normal or not (cos gynae ever said my gal may inherited lack of sleep from me as i don't sleep much when i preggy with her)..

is autistic inheritance in the family line or is it obtainable from vaccine as heavily debated? my direct cousin's (same surname as me) - her son an autistic, yell-shout-doesn't look at people, crawl under table, eat super-fast, knows the 24-hour time very well even without looking at the clock, good at calculations, etc..
 
Dear all,

The below message I copied from MOE website:

Teachers Trained in Special Needs (TSNs)

In addition, all schools are resourced with Teachers trained in Special Needs (TSNs) to support students with mild special needs.

As of the end of 2010, 10% of teachers in each primary school have been trained in the area of special needs to enable them to better support students with mild special needs. 20% of teachers in each secondary school will also be trained by 2012. Since 2005, about 3200 teachers have undergone training in special needs. The next phase of training will begin in June 2011.
 
upie/tam/kath/glymo118 - thanks for your inputs and weblinks!

yee - that's gd news! I do wish these trainings are extended to preschools! many just tell me they are not specially trained and so dunno how to teach my son. I feel so sick hearing that. There are so many things i have taught him and i am not specially trained too and yet i can teach him. I know he can learn, its a matter of patience and effort.
 
@mumto3,

Yes, assessment is conducted by KKH psychologist.

Hiaz wonder what the result will be, there are some tests that my son is not able to do..
 
Shinnonu,

I see..... the results are not given to you on the same day ? how long will you get the results ? meanwhile is your boy on waiting list for any of the eipic centre (early intervention centres).

Regards
momto3
 
hi Cynhere & yee,

Wwe really have to find a school who is willing to help us.....Those schools will say yes/willing to help us but at times, they really dont know how.... sometimes, they are also testing water....

Yee....my son now is in st gerard school at mount batten, if you wan....u can call the school... check with them.....they should be able to help you too. I enrolled my son in K1 as the class is smaller although my son should be in K2. Give it a try..... the school fee might be high but it would be betetr for our kids as they ahve experience in taking care of ASD kids.
 
cyn here.....no1 is trained here....we just do our best to help our kids.....which no1 will help us if we dont help our kids....lets do our best for them....hope that they will be good & learn from us.....alot of patient must be grow in us.... i do understand that sometime we will use up our patience....but our kids are jsut simple need more time & practices .... I do admit that sometime, i also get so angry with my son...but often think back....they jsut cant understand what we want them to do....
 
hi, i can pm you my cousin's email add if you are excited to know progress of an autistic child. her son is already 13 year old now..or try to link you up to her facebook. they reside in msia..
 
Kath - ya that is what I ve been doing. I try to teach n help him as much as possible. As parents, we can't give up but I jus feel the schools shld b more sympathetic to them n try to help instead of giving up on them. Jus by saying they r not specially trained is purely an excuse, it's a Gd way of saying I don't want to put in the effort to teach your kid. The phrase "I don't know" is actually something u ve yet to know and not bcos it's not possible to know.
 
Hi Shinnonu

May I know if the assessment was a straight 4hrs session or broken up to 3hrs + 1hr (feedback session without child) 'cos that was what we were given.

We went for the 3hrs last Friday & the psychologist was ok to continue for another 1hr so that we do not have to turn up 2 wks later but we declined due to other committments and also partly we do not wish her to rush through the feedbacks.

We opted for the assessment to be done at KKH DCD @ SACH though as that was the 'earliest' date that a psychologist is available to do the test for my boy.
 
anyone here who has sent their kids to Metta or Kits4kids? Are they the same type of school? They are not meant for academic right? so still need to go for normal preschool?

pls share. thanks!
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Hi Everyone
Time flies,my boy is turning 28 mths this month.

He has progressed from a non-verbal to a one-word user. Still undergoing speech therapy but on a bi-monthly basis. I have stopped his private therapy session but continued with the KKH sessions.

Social skills wise, he has also improved, I have seen him playing with other children and adults.

And at this age, he is able to read. I think the flash cards helped him. He is able to recognise and read many words like Enough, name, but, on, in, bed, eat, red, green, blue, ball, fan, bath, read, teeth, toes etc as well as his body parts.
The next step is to move him to a combiner (combine two words).

So with all these progress, we are not sure if we still want to put him under an autism assessment. Mummies, what do you think? Or maybe he is just slow in speech?
 
Srumpee - I honestly don't think ur son is autistic. At 28mths, his development is pretty normal, if not, jus alittle slow not v much delayed. At 28mths, my son can't even tell me verbally he want milk. Now at 46mths, he still can't socialize with other kids or adults. If ur child doesn't ve issues at home, in school or anywhere else, I don't see a reason y he shld get any diagnosis done. He is talking, he can demand or make requests?can he express what he want or don't want or tell his feelings or tell u what he see or ask qns? Mine still doesnt ask qns, doesn't chitchat with me, can't concentrate or focus in school.
 
Scrumpee,

In my opinion, the best person to decide will be your pd, as I have seen some autistic kids they can speak well and for social skills they can also 'play' with kids but for my son so far he can only play/ socialise with adults
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different kids display different traits, have a talk with your pd, see if the assessment is required ? just my 2 cts
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as I have not scrolled up to see what other skills that your boy might have acquired un your posts ....
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hi scrumpee

same as momto3, i think the best person to decide is the pd psychologist. my son's childcare teachers and principal also commented that they dont think he was autistic when we asked for their opinions. that was when he was only 2+.. hence we only took him for assessments after he turned three. we really hope tt we were more ks then..
 
Cyn here, momto3 and Tam
Thanks for sharing.

Cyn here
Yes, my son can make requests and tell us things that interest him. He will request for milk (can't say the word milk but can say 'neh neh'), for ipad, to read a book. If he sees something interesting on TV, he will run to us and tell us. When he listens to Chinese new year song, he will do the 'gong xi' action to show us and he made sure we see that.

Tam
What makes you send your son for assessment after he turned 3 since the teachers do not think he is?

I will probably give a call to the PD psychologist to get her opinion.
 
hi scrumpee
i send him to enrichment classes (unaccompanied speech n drama class), and a church kindy (after i pull him out of child care). but i was not impressed by church kindy after 2 mths there, so i put him in a montessori school (only accepts 3 years n above). the school principal call me to pull him out after 2 days. the enrichment class teacher also commented in him not able to participate in classroom actvities.. so we then realise there IS a serious problem and we quickly book both queues at CDU of nuh and kkh...
 
Surumpee....if u have doubts.....u can always check with the GP or pd that your kids is seeing.... like my son's case....he really dotn have eye-contact neither he response to our GP(who he has been seeing since he is young).... our GP told us to send him to NUH for further diagnose.... we were hestiating whether to bring our 1st son for that at that time as we felt that our 1st son might b slow....but after takign the psychologist's assessment(when he is 3yrs)...he confirmed that he is a ASD kid....
These yrs, he has showed improved.... specially after attending st gerard school where he picked up more words, more interests towards the academic.... teachers were impressed that my son showed a lot of improvement for just 2 months with them.... we are sure that my son can do it better with the help of the school & at home. Dont give up.....
 
Hi Chalkey,

Sorrie for responding so late... kindof bz with a new baby in the house recently.
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Your questions:
will lining up lego blocks or stacking lego blocks up high a normal action for all kids?
---Well, my son (back then) lined up EVERYTHING in a horizontal straight line, not just lego. It's like it was the only way he knew how to play with those toys.

by not seeking help when there is a need, wouldn't that displayed your son's independence character instead of being autistic?
--- Neuro-typical toddlers will seek help from adults. In the case of my son, he rather try until he gets upset/frustrated then throw a tantrum+cry+whine loudly than to seek help. And he does it repeatedly. He hasn't outgrown this part up till now.

how do you describe as one-part instructions, any example?
--- One part instruction: "Take off your shoes", or "Take your handkerchief"
Two-part instructions: "Take off your shoes and put them on the shelf", or "Take your handkerchief and put it in your bag"

If your girl can engage with others (adult and children) then she is not likely to be autistic. Why do you suspect her to be so then?

There is alot of debates about mercury present in vaccines causing autism, think PDs in Singapore are still don't believe in this. As for the trait running in the family, I really do not know. What I do know is if the first child is autistic, then it increases the chance for the subsequent child to be so too. So I'm actually kindof worried for my No. 2. Well, que sera sera, will take things as they come. I've seen (extremely) difficult children who are neuro-typical, normal kids. Mine who is autistic is not necessarily difficult all the time, since I have the skills and knowledge to handle him.
 
hi upie,
congratulations to your new born and both you and spouse are very brave. i'm sure this round, it will be lucky and a high intelligence child. have faith and trust in God's help.

i have finally managed to see the difference clearly between an autistic, hyperactive and normal kids behaviour from a playgroup that i sent my child to. my girl is on the active but normal side..a relieve although tired and stressed out by her full cheerful energy.
 
Hi Chalkey, glad to hear that!
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You must have been very worried previously. Do take some time off to de-stress and gather more energy to match your lil girl's! :D

Thanks for your encouraging words. All children are god-sent, and we feel blessed with everyone of them, with or without medical terms on them
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Hi mummies,

My boy is 20 months old and only say "mum mum" (whenever he wants to eat), "dadi" (not sure if he's referring to daddy). Somehow i believe he's having oral myological disorders which may also caused his speech delay. My boy eats and drinks with a tongue thrusting motion, and he stuff himself with big mouthfuls of food when self-feeding. My boy was borned with tongue tied and also found that his tongue is in low lying position which is why my boy's mouth is often open. My therapist advise me to stimulate his mouth senses by brushing his upper palate, inner side of the cheeks and tongue. Had been doing it for sometime and seems to have some little progress.

But at the same time he also have sensory issues due to his skull been compressed during labour so now having therapy to fix it. I'm worried he will be autistic although he does have eye contact with me and his sister but less with his daddy. He babbles a lot to me as if he's talking to me. But then he dun respond immediately to us calling him, he bangs his head when he's throwing tantrums (his pain treshold is high, will only feel pain when he bang hard), and sometimes he make some weird movement which we do not if something is wrong. My therapist advise a no wheat and dairy diet for him as it may aggravate his condition. I remembered once he took formula (he's breastfed), he became really hyperactive and was throwing a fierce tantrum which we never seen before.

Can some mummies advise what kind of home teaching i can do to improve his speech and learning. Since he's unable to speak so its not advisable to send him to a playgroup?
 
Hi Upie
i just updated my email address in my profile. hence u may PM me now. i just PM myself, it works
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CHalky,

Dont give up to have 2nd kid...even our 1st kid is autistic..... like me., I delivered my 2nd son at the age of 37...at times both of them can play tog.... we have the chance to teach our ASD son how to love/care for his little brother., which he know.. of cos, we would want our 2nd son to help his brother when he is older or till the time when we are gone. As we will get old & leave the world, we hope that there is another hand who can help our son., as it is impossible for us to be with him or kill him when is time for us to go. Dont worry...... just have another kid when you are still young.
 
taurus, it is ok to send your kid to the playground as he is able to mix with the rest of the kids which will help him indirectly. My ASD kid also dont have much speech but it is a good environment for our kids to learn.
 
hi, just to share. you need to be aware of your child's sexual awareness and interest when reach puberty and how to help them in this aspect. my cousin's son is 14yr old now and at this stage now. she attended talk on this topic at pathlight school last week. guess, you may hv to check up with the school for topics along with their age development now so that you know how to deal at each phase of progress.
 
Mummies
I have a question. Is it normal for a 28 mths kid not sharing toys with his peers? Does it fall under the Autism spectrum?

I observed my boy in school today and I saw his friends offering toys to peers but he doesn't. Then I realised that when he plays with his peers, he only likes to play catching and hide and seek but when playing toys, he is quite self-centred. Doesn't share toys. And recently, he is also very irritated when people touch him, he will scream at the person or shout 'No'.
 
But when he knows he is going home and we ask him to hug his friends goodbye, he will readily obliged by doing so and sometimes without us prompting. Like can't wait to go back home.
 


The thread has quieten. Anyway, I brought my boy to see the psychologist today. I was heartbroken. The improvements that he made, the talent that he has like reading turns out to be traits of autism. My psychologist said that my boy does display traits but she thinks he should only go for a full assessment when he turns three. Because although he has traits, it is not very obvious. His situation is very grey.

The traits that she observed are:
-His love for alphabets , numbers and colours.
-He still dun really play with his peers and children who are 2 years older dun count. Must be his age.
- his ability to read! Gosh I thought that is a talent ?! But according to the growth development, a child should be able to speak before he can read. So his talent is not considered normal? But how about those babies in the Your baby can read videos and Glenn Doman? Those babies certainly can read before they speak. And I have been showing those materials to my son since he was a 6mth old.
- his speech is still restricted to nouns and not conversational.

And the reasons that he may not be one are:
- he can pretend to smile or cry when we tell him to make faces
- he has eye contact
- he has social smile. When the psychologist calls his name and smile, he responded with a shy smile
- when the door bell rang, he will look at me and ask who? But perhaps I ask him that often.
- when my husband picks him up from sch, he will show my husband the star stamp on his hand which the teacher stamped on him.

Nevertheless, she asks us to continue the speech therapy
and attend We Care which help kids with poor social skills.
 

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