hi jackiejon,
the friend that i know whose bb had this condition, unfortunately, the bb passed away after 10 months due to other complications not relating to the heart.
so sorry to hear about your 1st child, but did you ask your gynae how the condition came about? is it due to a chromosomal or genetic abnormality? and is the condition a sporadic occurance?
you should perhaps consult a gynae that specialise in fetal maternal medicine (fetal assessment of abnormality, high risk pregnancies), they would be able to offer you more insight and if the problem is really genetic, they would even do blood test and trace your family history etc etc. And if you are pregnant with your 2nd child, they are able to perform complex obstetric scans to look out for any such abnormality at an early stage.
If you want, i can recommend my gynae to you, he is very experienced in this field.
my bb also had some abnormalities which was detected early, i also saw many gynaes in this field, so my advice to you is to seek help from such specialists.