Chillipadi-I also don't know how to say coz he is still fighting, coz we still need to monitor his weight, input/output everyday, stressed when 1 week is up to change his tubing coz as he grown up, the more harder for us to do the insertion. On a happier note, he likes to sit, stand, play toys, sometimes he can crawl too. Really I am looking and praying for the day he can off the tube, then can bring him go out.... but his body must be able to tolerate first.
I hope too he can start some solids although I don't know what he can eat since normal milk powder is a prob already...
Sometimes thinking too much really makes me feel depressed and sad, especially when thinking back.. those painful memories can never be erased.