hi mummies,
for his case, it not as simple as it is cos even the doc does not noe wat wrong. it already more than 6 mths. doc told me his case still a puzzle.
tat time, he did the lung biopsy, they afraid the platelets will be too low so b4 the ops they did the platelet transfusion. but after the ops, or even now, even though he still on medication, his platelets still drop. it is his own cells eating up his own cells.
I had seek a 2rd & 3rd opinions. the ans is the same as kk. they did not have a magic wand so they cannot make the miracle happen. wat we could do was to hope the platelets will increase by itself or if any doc overseas encountered b4.
having a 2rd one in mind is suggested by mr iceblue. I ask other doc, they say it the last resort cos they taking out the cells n replace with new one. I haven really ask his doc in charge. mr iceblue say just in case touchwood he really need it n there nothing for him.
his kidney is monitor by the urine during routine check up.
I am a bit worried abt the financial. I also afraid the 2rd one will be like him cos his case is not genetic or cancer. if I having the 2rd one, I afraid I could not give him all the attention n care. cos he is cranky everyday (side effect). on few occasions, he make me so angry tat I cried. I can't blame him also. he can't even attend school cos his immune system is low.
now mr iceblue is still waiting for my ans.