Hi All,
We would like to share our personal experiences of our donor programme at a Fertility Centre in puchong Malaysia. This is a long post and we’ve summarized as succinctly as we could. Please bear with us.
The Fertility Centre has introduced us to their donor agent for the selection of egg donors. He provided us 5 donor profiles but only one donor matched the same blood group as me. This donor cost the highest among the profiles that were shared to us. As I am keen to select a donor sharing the same blood group as me, I called the agent to find out more about the donor. He claimed that the donor has very good egg quality who have donated 1 time before at another well-known IVF centre in KL with 16 blastocysts and 7 Euploids. He told us that the previous IVF centre is calling her back for 2nd donation and his business partner may also want her. He told us that we have to make the decision fast if we want to select her. We felt a little pressured but do not want to miss the chance as we have been searching for a suitable donor for a long time. Based on the donor information the agent has provided us and last donation history which is 10th Jan 2023, we promptly signed the contract with the agent the next day and paid the required agent fee 2 days later on 8th May to book and secure the donor.
We then paid the clinic the required Donor check-up fees for the doctor check-up 2 days later.
Her blood test report shows elevated Haemoglobin F suggesting possibility of blood disorder and Alpha Thalassemia Trait cannot be ruled out. The doctor advised to put the donation on hold and for her to complete the genetic screening test before proceeding. We have paid an additional sum of RM3800+ for her genetic carrier screening test. Due to her coming exams in June, we raised a call to discuss with the doctor and consented to wait for her exams to finish before the agreed donation in her July cycle. We told the agent to reassure the donor not to worry too much about the genetic testing and let her focus on her exams. While waiting for her exams to finish, we passed messages to the agent from time to time asking her how she was doing and to take good care of herself. We have placed a lot of hope and faith on her.
Unfortunately, secretly without our knowledge, the donor went back to the previous IVF centre to do another egg donation on 2nd June 2023 (OPU) before her exams. While she was on the stimulation injections for another recipient, she returned to the Fertility Centre to do the genetic screening blood test on 25th May, running 2 donations at the same time.
In July, the donor’s menstrual cycle came later than usual. Unaware that the donor has already donated at another IVF centre in June, the doctor proceeded with her stimulation for our donor cycle in July.
The result was horrendous. Two different IVF centres using different protocols and medication, one month after the other, left us with 3 embryos and all were mosaic.
Uncovering the truth was devastating to us. We discovered about her 2nd donation in late August and learned that the agent has also lied to us about the donor’s January donation result as well: 8 blasts, he lied to us as 16 blasts. 5 euploids, 2 mosaics he lied as 7 Euploids.
We have reported the incident to the doctor since 1st Sept. We had a meeting with him and the agent but the agent denied knowing anything about the donor’s 2nd donation in June. We request a refund from him but he absconded and blocked us in WhatsApp, not replying to any of our messages or calls. We followed up with the clinic painfully week after week regarding the agent’s whereabouts but the clinic has not provided us with any updates till date.
We were emotionally distressed and felt that we have been deceived by their agent. We seek redress to the doctor but were given defensive answers, disclaiming responsibility that the donor’s poor result is likely cyclical. They replied us in email that “Here at XXX Fertility, potential donors are asked if they have previously donated their gametes, whether at XXX Fertility or at other fertility centres. It is expected of them to be truthful.”
We learned that the donor embryo’s result one month before us had 6 Blasts, 5 PGTA with 4 Euploids of good grades. But during our eggs collection time, the embryologist has commented that the donor’s eggs are “not that normal” in our donor cycle and the outcome is below the norm. It seemed that her body was under stress and her July menses was also delayed much later while her May menses was on time. Her egg quality has been compromised. Another doctor has commented that it is very rare for such an outcome of 3 mosaic embryos from a 23-year-old young donor. Hence, we really don’t believe that our donor cycle outcome is cyclical and not impacted by her donating secretly one month shortly before us.
We exhausted part of our hard-earned savings to purchase the donor oocyte incurring a sum of RM55 000 basing on the fact known to us that her last donation was in Jan 2023 with a clean break of not being subjected to any IVF treatment prior.
We felt that her secret donation one month before our donor cycle has breached the trust and integrity of the donor programme that we have signed up for. Their agent has also fabricated the donor’s past donation results in deceiving us.
This is what we felt may have contributed to the incident and failed donor programme:
Till date, we have not received any responses from them and they are not interested in our well-being.
People who can understand our situation, if you could put yourself in our shoes, what would you have done? We hope to seek opinions, advices and counsel as we don’t know who else we can turn to. Please help.
We wished that no one has to go through the financial loss and emotional distress that we are going through.
We would like to share our personal experiences of our donor programme at a Fertility Centre in puchong Malaysia. This is a long post and we’ve summarized as succinctly as we could. Please bear with us.
The Fertility Centre has introduced us to their donor agent for the selection of egg donors. He provided us 5 donor profiles but only one donor matched the same blood group as me. This donor cost the highest among the profiles that were shared to us. As I am keen to select a donor sharing the same blood group as me, I called the agent to find out more about the donor. He claimed that the donor has very good egg quality who have donated 1 time before at another well-known IVF centre in KL with 16 blastocysts and 7 Euploids. He told us that the previous IVF centre is calling her back for 2nd donation and his business partner may also want her. He told us that we have to make the decision fast if we want to select her. We felt a little pressured but do not want to miss the chance as we have been searching for a suitable donor for a long time. Based on the donor information the agent has provided us and last donation history which is 10th Jan 2023, we promptly signed the contract with the agent the next day and paid the required agent fee 2 days later on 8th May to book and secure the donor.
We then paid the clinic the required Donor check-up fees for the doctor check-up 2 days later.
Her blood test report shows elevated Haemoglobin F suggesting possibility of blood disorder and Alpha Thalassemia Trait cannot be ruled out. The doctor advised to put the donation on hold and for her to complete the genetic screening test before proceeding. We have paid an additional sum of RM3800+ for her genetic carrier screening test. Due to her coming exams in June, we raised a call to discuss with the doctor and consented to wait for her exams to finish before the agreed donation in her July cycle. We told the agent to reassure the donor not to worry too much about the genetic testing and let her focus on her exams. While waiting for her exams to finish, we passed messages to the agent from time to time asking her how she was doing and to take good care of herself. We have placed a lot of hope and faith on her.
Unfortunately, secretly without our knowledge, the donor went back to the previous IVF centre to do another egg donation on 2nd June 2023 (OPU) before her exams. While she was on the stimulation injections for another recipient, she returned to the Fertility Centre to do the genetic screening blood test on 25th May, running 2 donations at the same time.
In July, the donor’s menstrual cycle came later than usual. Unaware that the donor has already donated at another IVF centre in June, the doctor proceeded with her stimulation for our donor cycle in July.
The result was horrendous. Two different IVF centres using different protocols and medication, one month after the other, left us with 3 embryos and all were mosaic.
Uncovering the truth was devastating to us. We discovered about her 2nd donation in late August and learned that the agent has also lied to us about the donor’s January donation result as well: 8 blasts, he lied to us as 16 blasts. 5 euploids, 2 mosaics he lied as 7 Euploids.
We have reported the incident to the doctor since 1st Sept. We had a meeting with him and the agent but the agent denied knowing anything about the donor’s 2nd donation in June. We request a refund from him but he absconded and blocked us in WhatsApp, not replying to any of our messages or calls. We followed up with the clinic painfully week after week regarding the agent’s whereabouts but the clinic has not provided us with any updates till date.
We were emotionally distressed and felt that we have been deceived by their agent. We seek redress to the doctor but were given defensive answers, disclaiming responsibility that the donor’s poor result is likely cyclical. They replied us in email that “Here at XXX Fertility, potential donors are asked if they have previously donated their gametes, whether at XXX Fertility or at other fertility centres. It is expected of them to be truthful.”
We learned that the donor embryo’s result one month before us had 6 Blasts, 5 PGTA with 4 Euploids of good grades. But during our eggs collection time, the embryologist has commented that the donor’s eggs are “not that normal” in our donor cycle and the outcome is below the norm. It seemed that her body was under stress and her July menses was also delayed much later while her May menses was on time. Her egg quality has been compromised. Another doctor has commented that it is very rare for such an outcome of 3 mosaic embryos from a 23-year-old young donor. Hence, we really don’t believe that our donor cycle outcome is cyclical and not impacted by her donating secretly one month shortly before us.
We exhausted part of our hard-earned savings to purchase the donor oocyte incurring a sum of RM55 000 basing on the fact known to us that her last donation was in Jan 2023 with a clean break of not being subjected to any IVF treatment prior.
We felt that her secret donation one month before our donor cycle has breached the trust and integrity of the donor programme that we have signed up for. Their agent has also fabricated the donor’s past donation results in deceiving us.
This is what we felt may have contributed to the incident and failed donor programme:
- Engaging us to their Donor Agent who is unethical and has failed responsibility
- Oversight and lapses in their egg donation process and management
- Lack of vigilant checks on egg donors to comply with rules and regulation
Till date, we have not received any responses from them and they are not interested in our well-being.
People who can understand our situation, if you could put yourself in our shoes, what would you have done? We hope to seek opinions, advices and counsel as we don’t know who else we can turn to. Please help.
We wished that no one has to go through the financial loss and emotional distress that we are going through.
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