Being SPECIAL ,...

hidayah-
i understand ur concerns. we've been thru the same thoughts, over n again.

to me, developmentally delayed means he is slower in developmental milestones than the average child. and a late bloomer probably stands very close to the same line.
so if u ask for my humble opinion, i would say im not gonna put my bets on my unprofessional speculation.
attending a special presch helps to focus on the things he needs to manage in daily life. a playgroup helps him to interact, draw, do arts and sing songs. a special sch can teach him to wear his shoes, feed himself, learn to walk. something a "normal" presch may not have time and expertise to assist my kid.

u're right. i think a childcare has diff priorities from a playgroup. they can let alot of time slip by bathing 20 kids, feeding 20 kids, whereas we can do the feeding and bathing much more efficiently and have more time for constructive play n reading.


when a child is developmentally delayed, he may be late in one or two fields (gross motor, fine motor, speech..) but when he is globally delayed and the delay gaps seem to widen with time (say he was diagnosed with abilities of a 12month old at 15 months of age, and when he is 18 months old he is still at 12 month level.. ), then it is a cause for concern for me.

we're gonna put our boy in a normal playgroup (nothing too fancy or costly for fear that the expensive schs will start putting labels on the unique child), and attend rainbow at the same time if time permits.

we havent attended the 1st interview at rainbow. lets c how it goes. *wink
 


shauna,

so u r saying that yr boy is at a standstill is it? like the case 12mths stays at 12mths.. oh so got two types of devt delay.. looks like my gal is devt delay, not global cos shes delayed but she is not at a standstill. but anyway shes delayed in all 3 aspects..

anyway, i might be putting my gal in special sch. margaret drive is good rite? have been tinking abt this day and nite. hopefully i dun change my mind again. actually i would like to noe parents of developmentally delayed child in the special sch. those here. can u get me some contacts like email of those parents who has developmental delay kids.
 
hiyadah,
my apologies for not making myself clear.

my boy is improving, the example is to illustrate why devt delay shld be worrying.

global means all, everything.
devt delay means slower than average kid in achieving devt milestones.

so if ur gal is slow in more than 2 fields then it is global devt delay. this is as far as im aware of. bt i'm not a child devt specialist, i'm sure ur specialist or pd is able to guide u better on this.

i'm not sure if margaret drive is good. some mothers had/have their kids there. u may wish to consult their opinions.
my child is not enrolled in the sch as of now. we're still awaiting to meet the social workers. i do not know of any parents with developmentally delayed children and i do not have their emails leh. sorry!

so how is ur gal coping now? are the teachers in her playgroup aware of her delay?
 
shauna,

my gal is fine. her teachers doesnt noe abt doctor diagnosis. but wen i ask teacher how is she in sch. teacher say ok, she will play and everything. teacher didnt bring up anything to say she not ok in anything.
 
hidayah,

thats excellent! if she copes well in mainstream, then perhaps its not necessary for her to go to a special sch unless she really needs extra help. ")
 
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Ride a real Horse .... Fun Fair @RDA
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Dear mummies,

sorry to pop in just like that. Im reading thrus the different threads and this tread catches my attention.

I dun have a child with special needs. But my HB is a ex spec edu teacher and currently is still involve in spec edu but in dfferent capcity. Got to knows abr spec needs children tru him

I salutes all yr determinations to make yr child life a better one. Having a special need child in sg is not easy, be it fanancial wise or the lack of professional helps....

Laurentia is not the only medal winner is the ParaO. We still have PinXiu who broke world records and do us proud with 1 gold and 1 silver. Not forgetting Teresa, who do us proud too with the efforts and time she spent in swimming thous she didnt get any medal.
 
Hi mummies

Can I join the thread? My 3.5 yr old son has recently been diagnosed as suspected mild autism and is pending formal assessment at NUH in May 09.

Rence
How's your kid doing at rainbow yishun? Got a call from DIRC today to ask me which school I have in mind. As I stay in yishun, I was evaluating either Rainbow Yishun or ARC at AMK.

Can any mummies pls share with me the programme for autism at Rainbow? Does it consist of 1-to-1 therapy?
 
Hi wong,

My son was supposed to be enrolled this Jan at Rainbow Yishun but I had it delayed. His formal assessment at KKH result is NOT autistic although he passed marginally only. His main problem is severe speech delay. So I decided to concentrate on speech therapy at KKH first then see how it goes.

Heard Autism Resource Centre is very good...

Hope it helps...
 
Thanks, Rence. Happy to hear about your boy. I also hope my son will turn out to be not autistic, but will see how the assessment turn out. Could u share with me how's the assessment is carried out?

My son is no good with socialisation and slow in speech. He's already 3.5 yr and still at telegrahic language style, and not full sentence. His teacher complained that he does not participate during classes (he walk away and do his own thing).

His speech theraphy at CDU can only start in mid Apr cos all full. The therapy will be done weekly for 6 weeks and then cease for a while cos they need to make space for other new subsidised children. May need to send him for private class then but the cost is super high.
 
wld like to join in for support. My child is diagnosed with epilepsy and GDD. But we are happy that he is still developing well though slowere. Currently he is at a pte special school but we hv managed to secure a place for him at Kindergarten for next yr. But since he still require therapies, thus would like to seek advice here. Pte pricing are really too exorbitant for us. Thanks!
 
Hi all

I'm new to this thread. I have started to enrol my child in SPD for speech theraphy. My child has started uttering words when he was 15 mths old. But he stopped and started regressing and now he's 4 years old and not talking more than Hello and Bye. Doctors at CDU said he is not autistic as he seems happy always and like to be with children.

I saw this thread and saw that there is this Angelman Syndrome which I have quickly went to make research. Found that my child might have this. Is there any way to test this at KKH? Really feel so lost that my child might not be able to go mainstream school next year.
 
Hi,

I am new to this thread. My son is 4.5 years old and is diagnosed with ASD (dr at KK cannot confirm but put him under ASD).
He reached all his milestones but he's not communicating in sentence but he has very good memory and is able to say out the words/pictures that are shown to him. I have tried all therapies - EPIC, ST, OT and recently TCM (accupunture).
Feel distressed that I am helpless in helping him.
 
Just curious if anyone has tried TCM at Yu Guo (as mentioned in this thread) and does it helps?
I am seeing TCM at Jurong currently.
 
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Katia told me that David was very sensitive to noise, and would scream and cry when she turned on the blender in the kitchen. He would also scream in the car if she had the radio on.

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•He was visually focusing on his parents, making conscious eye contact and holding it for minutes at a time (before he would look all around the room, but not at them).
•He was clearly processing information from them when he was making this eye contact (his eyes seemed active instead of vacant).
•He stopped screaming when he heard loud noises, and even asked for the radio to be turned on in the car (in Katia’s words, there was no chance this could happen before… he didn’t like music from any source except TV).
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•He started eating apples… bananas were the only fruit he would eat before."

We are offering FREE treatment for 5 parents of autistic children. The conditions are that:
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The treatment is very safe, no side effects, no surgery, no drugs. Usually a whole month's of treatment would cost more than $2,000 but now you can get it for free if you are the first 5 eligible mums/dads.

I am sure you are asking yourself now: Can this be true? The question I would like you to consider is: What if it is true but you dismiss it? Would that be fair to your child and to yourself?

Even if there is any interest in finding out more, give me a no-obligation call at 98365214. We would only go ahead when you are 100% sure that it would help you and your child.

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Dear Parents,

I want to hear your experience and opinion. My girl's school bus provider want to remove her from the service because she has epilepsy and had 2 occasions of fits in bus. She is the mainstream and like anyother children except she has epilepsy.

Can the school bus operator do that just because my girl has a sickness?
 
Maybe they do not know what to do when the fits happens?
They are afraid that the bus driver will panic & cause accident?
 
Ya, my first response is perhaps they are not trained to handle fits and don't want to be responsible for anything that may possibly happen in the case of delayed medical assistance in the event it happens again.

Maybe if there is a TRAINED helper along with your daugher, they should be ok.

Hope your daughter's condition improves...
 
Yes, I think they just don't want to be responsible. The nurse from KK even called him up and wanted to explain to him but the nurse told me he didn't even want to listen and not easy to talk with in fact he didn't want to talk further.

Tomorrow I will have a meeting with the school and school bus manager and I know no one wants to take this burden. I'm actually dishearted. I can't imagine my 5 yrs old has to take public bus even with a company. The walk to bus stop is quite long and journey is long too. Can't imagine if it rains.
 
Try to request to have the helper and your child to be in the school bus (provided there's space) and yes, they may need you to pay for your helper's seat (it's a norm, no free seating as usual).

Perhaps they may be willing to have a written agreement indemifying them...but you need to train them or have a written emergency procedures & contact numbers in your child's school bag/prominent location which may help in case.
 
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