Recent content by Darlingson

I am no expert as this is still new to us (discovered in February). But from the research we have done, it sounds like medicaction is optional for your son which might explain why they asked you to go home and think about it. Though as mentioned our latest doc thinks medication should be started...

no worries. It is not an easy thing to accept. I have to face it every day and night and watch him having seizures and can do nothing about it. I have started to question everything. We were like you - the reason why we went to NUH was cos we needed a second opinion before putting him on the...

Hi there. I totally feel for you as we are trying out Epilim too and are suspecting side effects. All anti-convulsants have side effects. I wonder what "common and rare effect" they mentioned? My son who is 3 years and a bit started Epilim 3 weeks ago and we have just started on the...

Thanks Lay Koon. Yes read up on her. Think she is the one doing the rounds this morning I understand, not sure if she is assigned to us. Sounds like on this thread prof Ong is highly recommended. Should we ask for him? I am fearing the worst today....

Hi we took him to NUH and so far only been assigned to a rather junior doc? We will know more today. Think we are seeing prof low?

Hi Lay Koon, Thank you so much for taking the time to share. You affirmed what we thought was the right action. We brought the little one in today and he is admitted for further assessment and tests. We were lucky that by the time the paed neurologist finally turned up our son did have a...

Hi LK, You are a godsend, thank you. We have an appointment with NUH but the earliest they could give us is 11 March. And the one at KKH is 26th March. We too feel it is too long a wait. You mentioned your elder son has a difficult to treat condition - but did he have more than partial...

Hello all, Please allow me to revive this thread. I have found so many inspiring stories and know I am not alone. Our darling son who just turned 3 in Dec 2014 is having unusual jerking of arm and leg, and has been in "spaced out" / "drunken" episodes with a shy smile, lip smacking, swallowing...