Congenital Heart Defects
- Thread starter Reenean
- Start date
redvel
Well-Known Member
My girlfriend's son was born with it and he had gone through 3 major ops. He is coming one year old in a month's time.
If not for the strong parents and faith that they have, things wouldn't have come this far. No doc can tell if a 4th op might be needed in future. And yes they have seen many top notch docs.
I suggest that you join a forum dedicated to parents who are facing this. You'll get a lot of insights and encouragement from there.
Hope you'll be as strong as my friend, if not more. Take care.
If not for the strong parents and faith that they have, things wouldn't have come this far. No doc can tell if a 4th op might be needed in future. And yes they have seen many top notch docs.
I suggest that you join a forum dedicated to parents who are facing this. You'll get a lot of insights and encouragement from there.
Hope you'll be as strong as my friend, if not more. Take care.
My daughter had AVSD diagnosed when i was 5 months preggie. It was a journey taking care of her day to day especially her feeds but i have no regrets. She went for her open heart surgery at 4mths. Please be strong, worried if you must because its our natural mummy instinct to do so. If you need some info or listening ear, i am willing to help.
tangerinez
Member
Hello mummies, hugs and be strong. My 2.5 year old son has TGA, discovered when I am 20 weeks pregnant and he had his open heart surgery at 8 days old. Now healthy and happy. Pls PM me if you wish to chat on WA. I can lend a listening ear and try to advise on the steps. We have a small online support group too.
kate_boon78
Member
Hi Lindyc
My elder son whom is going to Pri 1 next year was also diagnosed with TGA at birth & had underwent open heart surgery during his first few days at life. Doctor has certified to exempt him from nafa test & competitive sports for his pri school journey & other than that, he is an active & healthy boy now. I am on the same online support group with Tangerinez, do pm me if you need some advises.
My elder son whom is going to Pri 1 next year was also diagnosed with TGA at birth & had underwent open heart surgery during his first few days at life. Doctor has certified to exempt him from nafa test & competitive sports for his pri school journey & other than that, he is an active & healthy boy now. I am on the same online support group with Tangerinez, do pm me if you need some advises.
Hi, I’m 20 weeks pregnant now & found out that my baby have TGA & may have other symptoms (unknown as of now). My husband and I felt that the world crash on us when doctor told us baby has a congenital heart defects as our family history do not have any. Did OSCAR scan but everything turns out fine. Now doctor advice me to do Amniocentesis & CMA test to confirm baby have no other Down syndrome. What do you all suggest?
Hi, can i join the grp chat for babies w CHD too? Wanna know more info. Thanks