She is coming 2.5yos. So far never show any symptoms yet. Dr Jonathan did mention surgery but no need to be so fast. But he did suggest best to be before the kid goes primary school so as not to obstruct their studies.
During the 2nd checkup, Prof Tan told us that surgery is likely to be required but will monitor first. The last checkup, Dr Jonathan said if the hole can close by itself then no need surgery so we asked him the period to monitor and he said will try to monitor till bb is 6 mths old. So far, my bb weight gain is ok, at the 50th percentile.
The monitoring is only till 6 months old? If by then hole never close will have to do surgery ASAP? Or can wait till the baby is bigger?
I am not sure too, i talked to 1 mummy which her bb undergone surgery at 5 mths for vsd closure. She said her child developed bronchitis and very poor feedings, so they decided to do the surgery. So, i think have to monitor the baby condition as he grows. If his health and development affected, i guess have to do the surgery to close up the hole.
Just curious, for ur gal case, detected at birth and no sign of closure till now? Since ur gal did not have any symptoms, surgery still required? If so, how u know when to go for surgery?
My girl is asd and the symptoms will be there if she gets bigger. Even if no symptoms and the hole is still there, eventually also have to close it to prevent anything from happen. Like play safe?
That's nice to know! Cos it's very heartbreaking to see your kid with so many tubes and lying in the ICU....Sigh.
Ya, i can understand the feelings too. For the 5 mths bb, he did his heart surgery in NUH by Dr Shankar, stayed in ICU and step down ward for 1 week before discharged.
Yes I heard Dr Shanker is a good surgeon. Many good reviews about him. Need to check with Dr Jonathan about his contact.
Yes, discharged after 1 week. On a positive note, recovery for kids with this type of surgery is good. Is heartbreaking to see them going thru but for the sake of being healthy in e long run, we just need to be strong. Can u update me if ur gal gg for surgery so that i can be prepared too?
Yes, I have heard of the good recovery. Yes for the sake of long run
This defect got VSD as well? Did gynae mention about the surgery part?
Today we went kkh for amniocentesis and rescan.. The doctor confirmed the findings are consistent and it's TOF Tetralogy of Fallot. We are meeting the children's cardiac team on Mon to update us about surgery post birth etc. They will be able to advise further. Thanks for replying dear!
Glad to hear that! At least it is diagnosed early. For alot of cases, it is not diagnosed until baby is out. Early intervention is good
Yes definitely. No parents will want their children to go through all these. And everything carries a risk even the medication we took. I also freak out by all the information online. But as parents we have to help them and go through whatever obstacles they need to face. I know some parents chose to live in denial and in the end cause harm to the child.
Yes I understand. As every defect is different. Some are more straight forward. Is this condition more complex than other heart defects?
I do not know yet as the appt is on 6 apr. I will let you know after we meet him. For your boy case, the asd is not detected at birth and only discovered at 5 yo?
Hi dear, how old is your child already? Yes indeed, the best solution is to do a surgery for e best long term outcome. I'm also following up at KKH Cardiac and the doc said it will be best for baby to grow to 8kg or 6mth/8mths to perform the surgery. My baby is now 7 weeks old and we just have to monitor him.
Beacuse of Covid19 , elective surgery postponed. Will be performed After 2/3 months. they not emergency but to be surgery to be performed, no other choice.
I see, then meanwhile is the child feeding or playing ok?
My baby is 9.5 mths old now, 8.7kg. We also monitor him from birth till now and was hoping to self heal. He did not have any symptoms but from the echo scan, his valve is trying to close the hole which is not the right way. I can understand the feelings when the doctor told me my bb got a hole in his heart. For now, we can only be strong and go thru this journey with him. Frankly speaking, i am still very scared and sad now but will be strong for my baby.
He's such a strong boy! He will be fine! In these past months, is there anything to take note while taking care of him cos my son is only 7 weeks and I'm also worried while waiting for the op.
Hi mummy, so long as he is drinking and growing well will be fine. Initially, i was also worried but my baby is just like a normal baby since birth. When he is younger, he will pant a bit while drinking milk so we let him take a break during feeding. As he gets bigger, he can drink all at one go and eats a lot of food now. I hope that he will have a smooth surgery and recovery and grow up healthy and happy. Stay positive and strong, mummy!
Hi dear, same here. Baby is happy and cute, and he's also panting abit while drinking, but will stop n continue. I burp him to take a break. I just v scared if he cries. So I minimise that too but responding quickly to his needs. Thank you for your encouragement! He's gonna be a strong fighter!
Which cardiac doc are you following up with?
I'm following up with Dr Jonathan Choo mainly. But have seen Prof Tan once.
Dr Jonathan is also the doctor my baby is seeing. We also seen Prof Tan twice initially but we switched to subsidized after that.
He is asymptomatic. No physical symptoms. Only it’s always pain to feed him. He took longer time.
I see, for baby's case usually it's feeding cos I understand it's their "exercise" as compared to toddlers and children. So I dun force but to see how much he wants. But he's an impatient eater lol and likes to drink, so I play by ear each time.
I was assigned to Dr Jonathan during my antenatal check then baby's follow up after birth.
Icic...ur baby also vsd? Discovered during pregnancy? Let's pray and hope that everything will turn out well for our babies. They are fighters
Yes for my baby's case it's TOF. So need valve replacement n patching of VSD.Icic...ur baby also vsd? Discovered during pregnancy? Let's pray and hope that everything will turn out well for our babies. They are fighters
Jiayou and be strong for your baby!
Thank you dear!!! Jiayou tgt!!!
Hi mummy, my baby underwent surgery to close his vsd in Apr at kkh, 3 mths post op now. Let me know if you need more information. How old is your baby?
