Any BB with G6PD Deficiency?
- Thread starter gtea
- Start date
Hello
Just to share, I'm G6PD deficient too. And so is my boy (50% chance to pass on to boys if mum is one). But I'm not worried at all. Coz it just means one needs to pay a little more extra caution when comes to food and medicine (chinese as well as western).
There are certain types of chinese herbs that G6PD deficient people can't take, but these are usually the not so commonly used ones. Common ones like dang gui, wolfberries can be taken (of coz I mean when older, not as babies). It is also not advisable to go near or be exposed for too long to mothballs. When comes to western medicine, juz let the doc know abt the G6PD deficiency and they will know what medicine to prescribe.
For babies, yes still ok to breastfeed. And no it is definitely not life threatening.
Just to share, I'm G6PD deficient too. And so is my boy (50% chance to pass on to boys if mum is one). But I'm not worried at all. Coz it just means one needs to pay a little more extra caution when comes to food and medicine (chinese as well as western).
There are certain types of chinese herbs that G6PD deficient people can't take, but these are usually the not so commonly used ones. Common ones like dang gui, wolfberries can be taken (of coz I mean when older, not as babies). It is also not advisable to go near or be exposed for too long to mothballs. When comes to western medicine, juz let the doc know abt the G6PD deficiency and they will know what medicine to prescribe.
For babies, yes still ok to breastfeed. And no it is definitely not life threatening.
Hi
My no. 2 is also a G6PD boy. Same for my 2 elder brothers who are also colour blind! So far dont think my boys are colour blind phew!
The most important common things to avoid are fava beans (in titbits and kacang putih), Chinese herbs and mothballs due to the napthalene. Plus when they are older, they cannot go for jungle training cos apparently they cannot take the malaria jab. It is always important to inform doctors during visits so that they can take note. We are super KS - we know the medical condition is indicated in the the patient record card but we always make it a point to "remind" the doctor of his condition. Better safe than sorry. Plus i think mostly boys get it not so much gals
My no. 2 is also a G6PD boy. Same for my 2 elder brothers who are also colour blind! So far dont think my boys are colour blind phew!
The most important common things to avoid are fava beans (in titbits and kacang putih), Chinese herbs and mothballs due to the napthalene. Plus when they are older, they cannot go for jungle training cos apparently they cannot take the malaria jab. It is always important to inform doctors during visits so that they can take note. We are super KS - we know the medical condition is indicated in the the patient record card but we always make it a point to "remind" the doctor of his condition. Better safe than sorry. Plus i think mostly boys get it not so much gals
J
jandew
Guest
I am also G6PD deficient. My grandfather has it, many of my male cousins have it. But my younger sis does not have it.
More guys than ladies have it somehow.
Yes to avoid Java beans, gota avoid Chinese medications too. Once I took flu med, end up looking like goldfish.
More guys than ladies have it somehow.
Yes to avoid Java beans, gota avoid Chinese medications too. Once I took flu med, end up looking like goldfish.
i am g6pd deficient oso...so my 2nd kid, a boy, oso kena..nothing serious though...just food allergy esp chinese medicine as mentioned above...oso best not to buy the pre packed brown rice as some contents might not be suitable..i gave my boy when he started to wean and he had rashes over his mouth so the pd advised me to stop...then his rashes recover...
J
jandew
Guest
Joce, oh dear, do u mean th adult brown rice or for kids type? I juz bot some brown rice that day but yet to cook.
Hi Jandew,
My son (this year turning 4 yrs old) is G6PD deficient. I have been cooking organic brown rice (packaging with elephant pic) for him since he started to wean. No problem till now. I did not purchase any of those pre-packed brown rice (powder form) which are available in medical hall. Pls bear in mind there are certain Chinese herbs that G6PD deficient child needs to avoid.
My son (this year turning 4 yrs old) is G6PD deficient. I have been cooking organic brown rice (packaging with elephant pic) for him since he started to wean. No problem till now. I did not purchase any of those pre-packed brown rice (powder form) which are available in medical hall. Pls bear in mind there are certain Chinese herbs that G6PD deficient child needs to avoid.
For people with G-6PD deficiency, one do not exhibit signs of allergies when exposed to the offending agents.
So rashes and swollen eyes are not due to G6PD but true allegies. When G6PD people are exposed to eg. fava beans, their red blood cells will break down and exhibit signs of anaemia.
So rashes and swollen eyes are not due to G6PD but true allegies. When G6PD people are exposed to eg. fava beans, their red blood cells will break down and exhibit signs of anaemia.
lovemum2be
Member
My son also has G6pd, and I have completely no knowledge that I was a carrier. Pd has advised bb to stay in hospital for a week for observation as they are pretty prone to jaundice.
Can't wait to bring my son home. But I m now doing confinement and still has intention to bf. Wonder if I can use those herbal medicine to bath or not and can do Malay wrap?? Scare will affect bb.
Can't wait to bring my son home. But I m now doing confinement and still has intention to bf. Wonder if I can use those herbal medicine to bath or not and can do Malay wrap?? Scare will affect bb.
hi amanda,
my boy also has G6PD.
while i BF, i try not to take too much ginger.
he stayed in hosp for 9 days.
now he is 12mths liao -- happy & active.
G6PD is not life threatening. just be careful not to offer him those restricted food & stay far away from mothballs!
my boy also has G6PD.
while i BF, i try not to take too much ginger.
he stayed in hosp for 9 days.
now he is 12mths liao -- happy & active.
G6PD is not life threatening. just be careful not to offer him those restricted food & stay far away from mothballs!
lovemum2be
Member
Hi snow baby, good to know ya bb is doing v well. Happy for u. Bb is out Liao, went to pd today. Said that only 1st 3 days need to be concern abt jaundice. Thereafter abit of sun tanning everyday will be good enuff Liao.
Yes, fava beans and moth balls are def prohibited in my household heh.
Yes, fava beans and moth balls are def prohibited in my household heh.
lovemum2be
Member
Hey Gie,
How abt Green Papaya with fish soup instead?
At least u know its all natural.
If not, do check with the PD to be real safe yah.
How abt Green Papaya with fish soup instead?
At least u know its all natural.
If not, do check with the PD to be real safe yah.
hi Amanda,
Thanks for your reply, i used to cook papaya wif fish soup, but as i am taking care of my boy myself and recently he start to crawl and refuse long nap so abit hard for me to cook myself. Was thinking of other alternatives so sacred tea was the easiest just pour hot water only. Order a pack but now worried if can drink or not. Wanting for my pd to get back to me, but think he is too busy cos still no reply.
Thanks for your reply, i used to cook papaya wif fish soup, but as i am taking care of my boy myself and recently he start to crawl and refuse long nap so abit hard for me to cook myself. Was thinking of other alternatives so sacred tea was the easiest just pour hot water only. Order a pack but now worried if can drink or not. Wanting for my pd to get back to me, but think he is too busy cos still no reply.
gemson
Member
snow baby, actually my baby stomach no wind is normal is only that he don like drink water.Si i heard tat gripe water got a bit peppermint favour drop few drop into water so he can drink more water...so i juz wanted to ask whether G6PD bb can drink or not?If can then i buy for my bb boy drink.
lovemum2be
Member
Gripe water is fine. Let my bb drink it everyday so far so good. No prob at all
lovemum2be
Member
Dear /red{mummies}
wanna confirm our bb can take tofu yah?
wanna confirm our bb can take tofu yah?
hi! My son is G6PD deficient. PD said straightaway that he got it from me. Am wondering...
(1) Can G6PD deficiency be passed down from father to son instead?
(2) Can I undergo a blood test to confirm if I'm a carrier or if I'm also deficient myself?
(3) Should my daughter be tested, cos she may be a carrier too right?
Find it very difficult to get info on G6PD. Even polyclinic doctors also not knowledgeable in it. My husband insists that I'm deficient (i.e. not a carrier only) and that it/I was the cause of a miscarriage. Find it so unfair for him to insist on this without medical proof.
Appreciate any advice from mummies. Thanks!!
(1) Can G6PD deficiency be passed down from father to son instead?
(2) Can I undergo a blood test to confirm if I'm a carrier or if I'm also deficient myself?
(3) Should my daughter be tested, cos she may be a carrier too right?
Find it very difficult to get info on G6PD. Even polyclinic doctors also not knowledgeable in it. My husband insists that I'm deficient (i.e. not a carrier only) and that it/I was the cause of a miscarriage. Find it so unfair for him to insist on this without medical proof.
Appreciate any advice from mummies. Thanks!!
hi ryne,
its unfair for ur hb to say that u cause the miscarriage. he has to getthe facts right and not play the blaming game!
I am sure your gynae told u the reason for the miscarriage?
I had a miscarriage once.
The "baby" will not survive if the conditions are no good in the first place..can be due to many factors. A miscarriage may be a "gd" thing cos the quality is no good in the first place. ur body dispels it naturally. ur gynae is the best person to explain this to ur ignorant other half.
(1) Can G6PD deficiency be passed down from father to son instead? Not likely - check with doctor or surf the web for more info
(2) Can I undergo a blood test to confirm if I'm a carrier or if I'm also deficient myself?
I believe so.. but whats the point??
(3) Should my daughter be tested, cos she may be a carrier too right? I believe so.. but whats the point?? just let her know when she grows up.
most impt is tht u take care of ur son and do not let him eat/ get close to the "dangers".
Otherwise, a G6PD kid is as normal as any other kids. Dun let this worry u unecessarily.
I know there are doctors out there who are G6PD themselves.
its unfair for ur hb to say that u cause the miscarriage. he has to getthe facts right and not play the blaming game!
I am sure your gynae told u the reason for the miscarriage?
I had a miscarriage once.
The "baby" will not survive if the conditions are no good in the first place..can be due to many factors. A miscarriage may be a "gd" thing cos the quality is no good in the first place. ur body dispels it naturally. ur gynae is the best person to explain this to ur ignorant other half.
(1) Can G6PD deficiency be passed down from father to son instead? Not likely - check with doctor or surf the web for more info
(2) Can I undergo a blood test to confirm if I'm a carrier or if I'm also deficient myself?
I believe so.. but whats the point??
(3) Should my daughter be tested, cos she may be a carrier too right? I believe so.. but whats the point?? just let her know when she grows up.
most impt is tht u take care of ur son and do not let him eat/ get close to the "dangers".
Otherwise, a G6PD kid is as normal as any other kids. Dun let this worry u unecessarily.
I know there are doctors out there who are G6PD themselves.
snow baby,
thanks for your reply.
Like you said, there can be many factors to a miscarriage. Gynae also couldn't pinpoint any specific reason. i just happened to fall into the 20% of pregnancies that end in a miscarriage.
Yes, hubby playing the blame game. He surfed the web and found that it could be passed from father, so he suspects my father has it, passed to me, and i passed to our son. He insisted that my parents be tested to trace family history. As u said, what's the point???
I want to undergo the blood test to confirm if I'm the carrier/and or am deficient also. Cos hubby insists I'm deficient cos I show signs of tiredness, lethargic (i.e. signs of anemia). Pls lah.. I take care of a 3yo and a baby 24/7 with no help. There're bound to be days when I simply konk out due to sheer exhaustion. I just want medical proof to prove him wrong.
As for my daughter, there is a slight chance she didn't get it (it's not passed down 100%), so I prefer to hv it confirmed through blood test.
yes, G6PD can be as normal as other kids. So unfair that my family is being blamed for "harming" our son.
thanks for your reply.
Like you said, there can be many factors to a miscarriage. Gynae also couldn't pinpoint any specific reason. i just happened to fall into the 20% of pregnancies that end in a miscarriage.
Yes, hubby playing the blame game. He surfed the web and found that it could be passed from father, so he suspects my father has it, passed to me, and i passed to our son. He insisted that my parents be tested to trace family history. As u said, what's the point???
I want to undergo the blood test to confirm if I'm the carrier/and or am deficient also. Cos hubby insists I'm deficient cos I show signs of tiredness, lethargic (i.e. signs of anemia). Pls lah.. I take care of a 3yo and a baby 24/7 with no help. There're bound to be days when I simply konk out due to sheer exhaustion. I just want medical proof to prove him wrong.
As for my daughter, there is a slight chance she didn't get it (it's not passed down 100%), so I prefer to hv it confirmed through blood test.
yes, G6PD can be as normal as other kids. So unfair that my family is being blamed for "harming" our son.
Hi ryne,
I am "angry" to hear that ur HB blames u for that.
You have to EDUCATE him that G6PD is not a DISEASE! its natural occurence..
And that your tiredness is cos u need to take care of the children.
Now that he know that u are a carrier, then he shld extend a helping hand or give you more care n concern!
most likely , as per my doc say, we got the "G6PD" traits from mother..
Even so, whats the big deal?!
If u dun hv ur mohter, then u will not exist and he wont have you as a wife..
He got to knock some sense into him..
I can foresee that if ur son fall sick in future, he will start to blame u for the POOR genes!
take good care !
I am "angry" to hear that ur HB blames u for that.
You have to EDUCATE him that G6PD is not a DISEASE! its natural occurence..
And that your tiredness is cos u need to take care of the children.
Now that he know that u are a carrier, then he shld extend a helping hand or give you more care n concern!
most likely , as per my doc say, we got the "G6PD" traits from mother..
Even so, whats the big deal?!
If u dun hv ur mohter, then u will not exist and he wont have you as a wife..
He got to knock some sense into him..
I can foresee that if ur son fall sick in future, he will start to blame u for the POOR genes!
take good care !
Hi hi
really sorry to hear that your husband makes such remarks... I am not sure if there is any other problems in your marriage or his character that he insists on playing the blame game for something which is beyond your control. My 2nd boy has G6PD, I have had 3 miscarriages but my husband has never blamed it on me...Don't tell me if you had gone for a medical check and found that you are carrier, he wouldnt have married you? Is he 100% sure he is not a carrier or there is no one in his family history with this?
Some men are just plain selfish and childish... Dont get yourself all upset over that.
really sorry to hear that your husband makes such remarks... I am not sure if there is any other problems in your marriage or his character that he insists on playing the blame game for something which is beyond your control. My 2nd boy has G6PD, I have had 3 miscarriages but my husband has never blamed it on me...Don't tell me if you had gone for a medical check and found that you are carrier, he wouldnt have married you? Is he 100% sure he is not a carrier or there is no one in his family history with this?
Some men are just plain selfish and childish... Dont get yourself all upset over that.
justme,
it's his character, and also our marriage is not going too well. He even blamed my mother for not knowing abt this condition in the family. Come on... I only heard abt G6PD after my boy was diagnosed. I don't expect my mother to know this kind of stuff. He also claims that she dare not go for blood test in case it's really my father who has it, and it is found that she has been 'poisoning' him with those herbs he shld avoid. (My father is the lazy/lethargy type and has some medical conditions.) There's no end to his accusations and I'm so sick of it!
Is your 1st child a boy too? He is not G6PD?
it's his character, and also our marriage is not going too well. He even blamed my mother for not knowing abt this condition in the family. Come on... I only heard abt G6PD after my boy was diagnosed. I don't expect my mother to know this kind of stuff. He also claims that she dare not go for blood test in case it's really my father who has it, and it is found that she has been 'poisoning' him with those herbs he shld avoid. (My father is the lazy/lethargy type and has some medical conditions.) There's no end to his accusations and I'm so sick of it!
Is your 1st child a boy too? He is not G6PD?
Hi ryne
Most important of all, stay strong for your kids and dont get upset cos of his stupid remarks - let him be.
I have 3 boys and only the middle boy has this condition. So far so good, guess nowadays, we dont take so much chinese medicine, use mothballs or eat fava beans and even western medicines so far has not contents that will affect him. Actually my mum once accidentally gave him some fava beans (those in mixed nuts) and he was ok - thank god!
By the way, this boy of mine is definitely not the lethargic or lazy kind so I dont believe in your husband's "theory"
Most important of all, stay strong for your kids and dont get upset cos of his stupid remarks - let him be.
I have 3 boys and only the middle boy has this condition. So far so good, guess nowadays, we dont take so much chinese medicine, use mothballs or eat fava beans and even western medicines so far has not contents that will affect him. Actually my mum once accidentally gave him some fava beans (those in mixed nuts) and he was ok - thank god!
By the way, this boy of mine is definitely not the lethargic or lazy kind so I dont believe in your husband's "theory"
justme, snowbaby,
thanks for your comforting words! [IMG=http://www.singaporemotherhood.com/forumboard/clipart/happy.gif] I was afraid this thread may have stopped cos last post was in April, so wasn't expecting any replies. Will stay strong.
justme,
I've read that G6PD is usually passed down to 1 son if you've 2 sons, like 50% chance. Good to know 2 of your sons don't have it. Yes, as long as we stay away from those dangerous items, which fortunately is quite easy to control, our kids are just like any other normal kids.
thanks for your comforting words! [IMG=http://www.singaporemotherhood.com/forumboard/clipart/happy.gif] I was afraid this thread may have stopped cos last post was in April, so wasn't expecting any replies. Will stay strong.
justme,
I've read that G6PD is usually passed down to 1 son if you've 2 sons, like 50% chance. Good to know 2 of your sons don't have it. Yes, as long as we stay away from those dangerous items, which fortunately is quite easy to control, our kids are just like any other normal kids.
yup they will let you know once they do the blood test after your deliver.
Not sure about the toothpaste cos my brothers who have G6PD have been using it since young and all's well [IMG=http://www.singaporemotherhood.com/forumboard/clipart/happy.gif] In fact i intend to let my no. 2 use it very soon.
Not sure about the toothpaste cos my brothers who have G6PD have been using it since young and all's well [IMG=http://www.singaporemotherhood.com/forumboard/clipart/happy.gif] In fact i intend to let my no. 2 use it very soon.
sabrinakhoo
New Member
hi has anyone checked out http://g6pddeficiency.org? List of contraindicated included ALL beans including soya beans. Any view? Thanks
cheekybonbon
New Member
Hi all,
My bb is 5 mths old n he is a G6PD deficiency boy. He was given 5in1 3rd dose of DPT/DT & 2nd dose of PNC injection last Sat, started to has high fever and rashes since Sat night. He also having cough since Sun night till now.
Does anybody know will the mentioned injection cause high fever, rashes and cough? And does a G6PD deficiency boy allowed to consume "chuan1 bei4 mu3" (川贝母) for coughing?
Thanks
My bb is 5 mths old n he is a G6PD deficiency boy. He was given 5in1 3rd dose of DPT/DT & 2nd dose of PNC injection last Sat, started to has high fever and rashes since Sat night. He also having cough since Sun night till now.
Does anybody know will the mentioned injection cause high fever, rashes and cough? And does a G6PD deficiency boy allowed to consume "chuan1 bei4 mu3" (川贝母) for coughing?
Thanks
Hi cheekybonbon,
A vacibation usually causes mild fever and not high fever. If high fever, I suspect your baby caught done virus while at the clinic. I suggest you bring the baby to the Pd for cough Meds and not self medicate with Chinese meds. Reason is there are many ingredients in Chinese meds and the labeling may not be 100% complete. And unless you know the Chinese meds well, try not to give them to your baby. Can try to give when they are teenaged and able to accurately tell you if they are feeling anemic (reaction due to g6pdd).
A vacibation usually causes mild fever and not high fever. If high fever, I suspect your baby caught done virus while at the clinic. I suggest you bring the baby to the Pd for cough Meds and not self medicate with Chinese meds. Reason is there are many ingredients in Chinese meds and the labeling may not be 100% complete. And unless you know the Chinese meds well, try not to give them to your baby. Can try to give when they are teenaged and able to accurately tell you if they are feeling anemic (reaction due to g6pdd).
