Heart Mumur

hi happytots - another thing to add...my son's VSD (the peri) is abt 9++mm.. that hole is patched by Dr Shankar during his second heart operation. Technically it is good to do surgery when the bb is abt 8kg, but becos my son did a banding, his band is tight and is restricting his growth and feeding, hence we did the surgery when he is just 6kg.

during that time there is another bb who needed an emergency surgery in the morn and he just have 1 hole in the heart but there was no banding. Dr SHankar explained that banding is usually done when there is multiple holes (like my son's muscular vsds).

Now we r seeing Dr Wong for echos in 4 mths (sept) to see the artery (as it was tight due to the banding being tight)
 


My son has his surgery done abt a fortnight ago.
However, complications and he has to do it again within 3 days. I am very sad and angry with surgeon team. How many pp need to do it 2x. Strike lottery also not so "june".
Now, the outcome also like floating in the air.
I am very disappointed with KKH.
I dunno how I can pull thru this ordeal. Keep thinking if I hv made the right decision to go for surgery.
I shd hv asked for 2nd opinion.
Anyway, I am very depressed now seeing his wounds etc. I worried abt my son and dunno I can still go back to work??
Sometimes, I hope I can turn back the clock and I will not subject him to the surgery.
He is quite hysterical now, prob post opn trauma.
Not to mention him, even I also find that it is damn traumatising.
 
hi happytots, i pm u my HP no. U can call me. I

Are u seeking 2nd opinion now and who is his surgeon and cardiologist at KK? What are the complications? Is his 2nd op successful?

I understand u are in trauma and feeling v helpless and frsutrated. taking care of post op baby is not easy cos they are in pain and fuss alot. Hence u must be patient and calm, then bb can feel it.

I dun think u are wrong in letting ur bb go thru surgery, if the doc think he shld be operated it is usually a need to. The worst is no surgery and he turns blue or even black with other health complications, then the surgery will be comprised.

sayang him more, dun squeeze him cos his ribcage still healing, carry him and walk about in garden and tell him he is a strong boy.

My son was in trauma in the hospital, he usually is v friendly but then he absolutely hates the nurses and even the docs. To him nurses= pain cos he has to do physio. Last day his mood is better and smile and befriended back his docs.

Being small and young, they will forget the operation and pain, just hang on...v soon he will be a healthy little boy and the best part is u dun have to worry much abt his heart and he can grow normally.
 
What is PM??
How to turn on PM??
Dun want to put names on website.
Ya, first day, he is very hysterical, we only manage to get him to sleep at 4am.
These 2 days better.
I also dunno successful or not, they say need to review and assess again. Very unprofessional.
Vote of no confidence to them.
Now not seeking 2nd opinion, hope everything turns out well.
I really hate experience there. It still haunts me and of course my poor son.
 
u can go to ur profile and turn it on. u can pm me by clicking on my name above and they will say sned private message (pm).

it is common to review and assess...my son's case the holes are patch nicely but his artery is constricted so echo in Sep. Maybe u can seek 2nd opinion by echo with Dr wong. thru echo he can see if ok.
 
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My boy is 2 mnths 2 wks old, new PD said he might have hole which hasn't closed up yet.
Prev 2 PD and 1 PD in hospital did not mentioned anything abt this, and they did thorough check up. Should I wait a while and seek a second opinion before going to Heart Specialist?
My first born also diagnosed with murmur when she was born, but was ok at 6 wks and later check up. Anyone with similar experience?
 
hi lia, maybe u shld bring ur boy to see the heart specialist. for the peace of mind. Both my gals are diagnosed with heart murmur.
 
Hi, Sorry for the long absence, cos i was busy with my kids. Hi QMS, i hope you are well.

My daughter is diagnosed with ASD at 9 months, we have been monitoring her very closely, we need to do an ultra sound every 6 months, she is now 4 years old and lucky for us, her hole is getting smaller, but still there. So Pd says we still need to monitor her. Pd says maybe no need to go for operation
happy.gif


hi lia, bring your son for an ultra sound, hopefully it is not that serious! Good luck!
 
Hi Rachel
Yes, my son had it at birth & he went thru aterial switch...He is now 15 mths old...You may pm me if you want further discussion
 
Hi All,

Is there any mummy with kid who experience ASD (18mm) with enlarge heart?

Any operation done relating to this with Dr. Shankar?

Kindly advise.

Thank you.
 
Hi all,

My daughter is due for a FT operation very soon. Looks like we will get Dr. KK Ong to do the operation at KKH? Anyone has previous experience with Dr. Ong?

Thanks
 
Hi mummies,

Is this thread still activity? My dd was born with ASD (5.2mm) n VSD (6.8mm), Dr Tan fm KKH advice for op when she is 2-3 mth old but her weight is oni 2.8kg now.. I'm gg to Dr Shankar for a 2nd opinion.

Hope some mummies can give some advice
 
Hello! My bb had PDA at birth and had seen Dr Wong. He recommended my bb to see Dr Shankar for surgery at 5th month. However, as Dr Shankar does private practice and is not with KKH, the surgery fees will be high, I didn't send him to see Dr Shankar. Instead I went by the polyclinic referral way to see Dr Tan TH. Dr Tan concurred that my bb had to have surgery in order to lead a normal life. And my bb was supposed to be done by Dr KK Ong. However, eventually my bb was to be operated by Dr Nakao. And Dr Nakao did it wonderfully. Dr Nakao reports to Dr KK Ong and Dr Wong KY. Thus, if your child's surgery is to be done by Dr KK Ong, I believe it should be safe. I'm glad that I made the decision not to go for private practice and have the surgery done by Dr Shankar. The cost was kept low at KKH and the service and care towards my bb was fantastic.
 
Hi All,
My 2yr old daughter is diagnosed with Large ASD (1.98cm approx), so surgery is needed. Transcatheter device closure is deemed unsuitable to inadequate rims (i.e. no flesh sticking out from the wall where the hole is).
PD recommended to see Dr Shankar who is located at GlenE.
We will opt to do the procedure at KKH but not sure how the cost might work out if we request to have Dr Shankar perform the procedure. Anyone has any advice?

I've found some articles on the web in case anyone is interested in finding out more on the different congenital heart defects.

http://mountelizabeth.com.sg/resources/Articles/Heart_Vascular/4_MYB%20Ad_24Mar11_If.pdf

http://www.nuhcs.com.sg/patients-and-visitors/our-services/heart-lungs-and-vascular-surgery/surgery-for-paediatric-congenital-heart-diseases.html

http://www.annals.edu.sg/pdf/39VolNo8Aug2010/V39N8p629.pdf

If anyone as a review on your/your child's experience with Dr Shankar or any recommended surgeons at KKH, I will really appreciate it.
 
Hi all,

My girl was diagnosed with heart murmur when she was 3 days old by the PD and immediately he called Dr Wong down to the hospital and did an echo scan on her. She was diagnosed by with ASD (5.5mm, I think) and mild PS, which Dr Wong said it is mild, currently, She does not need to do any operation but if the hole is still there when she is older, there will be a need to close up the hole. We were asked to go back to him for review when she was 3 months old.

Last week, we went back to PD for review and the heart murmur is still there.

Called Dr Wong's pte clinic last week for appointment and the nurse told me that we have to bring $380 cash down for payment as they do not have nets or visa. I was thinking of going to polyclinic and get a referral letter and go to KKH instead as I am not sure I can afford the cost of treatment.

Catloi, what is the subsidised rate in KKH?
 
Hi, hope that this thread is still active. My girl is going for surgery next week for her ASD. I am thinking of choosing ward B2 for her, however if i choose B2, i will not be able to choose the surgeon. Heard that there are only three cardiac surgeons in KKH who are all very experienced, so actually there is not much difference between these 3 cardiac surgeons.
However, i would still like to seek some advice here. TIA!!
 
Hi, wonder if this thread is still active? I would like to check anyone with experience with Biscupid Aortic Valve (BAV)?

My 10yr old girl is diagnosed with this congential heart disease recently after doc discovered her heart murmur...

KkH specialist told me this condition is very common but I could not find much discussion locally.
 
hi anyone can advise on asd 8.6mm? my girl is 3 years old and had asd since birth. doc say likehood to close on own is low.
 
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