Mastocytosis babies

pbcjohn

New Member
My daughter was diagnosed with localized mastocytosis by KKH. Because of that she had also Urticaria Pigmentos. Which will cause her skin to have brown spots on her legs. Sometimes out of no reason, flushing, followed by blistering on her head and partially on her face.

https://en.wikipedia.org/wiki/Urticaria_pigmentosa

Recently KKH hematologist had infd that her blood sample test result indicated high level of histamine >200.

https://en.wikipedia.org/wiki/Histamine

Doctor suggested doing bone marrow testing, to make sure she doesn't have systemic Mastocytosis.

http://emedicine.medscape.com/article/203948-overview

So far KKH specialist told us that so far not much cases in S'pore and they had so far seen 3 patients with the same condition.

Hope we could do more for my baby daughter. But too bad the treatment for this condition are not very advance still.
 

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